Archives




Blog Post | Independence, Personal Stories

Quest for Success: Dr. Chris Rosa

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. Success looks…

Tags: College, Education, Employment, Personal Care Attendants, Quest for Success, Staying Active


Blog Post | Get Involved, Lifestyle

A Magic Collaboration at the MDA Tribute Tour in Boston

Magic Wheelchair has been making custom, adaptable wheelchair costumes for seven years, having provided one-of-a-kind costumes to over 300 individuals living with a disability.  Just in time for Halloween, the…

Tags: Community, Fill the Boot, MDA Tribute Tour


Blog Post | Advocacy, Independence, Lifestyle, News

Will New Federal Funding Make Public Transit More Accessible?

New federal funding is available to help make public transportation more accessible. Here’s how it can make a difference.

Tags: Accessible Air Travel, Featured Content, Travel


Blog Post | Health, Lifestyle

Stress Management Tips for Family Caregivers

These 10 tips help family caregivers manage stress and avoid burnout.

Tags: Caregiving, Mental Health, Relationships


Blog Post | Finding a Diagnosis, Science + Research

Simply Stated: Research Updates in Congenital Muscular Dystrophy (CMD)

Congenital muscular dystrophy (CMD) refers to a group of genetic muscle diseases that become apparent within the first two years after birth. CMDs belong to the larger group of disorders…

Tags: Simply Stated


Blog Post | Advocacy

MDA Advocates Returned to Capitol Hill (Virtually)

After a three-year hiatus, advocates went back to Capitol Hill, but this time virtually. On September 28th and 29th,  families from across the country raised their voices and urged lawmakers…

Tags: Accessible Air Travel, Advocacy Updates, Clinical Trials, Genetic Testing


Blog Post | Science + Research

Clinical Trial Alert: Phase 3 Study of Inebilizumab in Adults with Myasthenia Gravis

Researchers at Horizon Therapeutics are seeking adults living with myasthenia gravis (MG) to participate in a phase 3 clinical trial to evaluate the safety and efficacy inebilizumab to treat MG. Inebilizumab…

Tags: Clinical Trial Alert


Blog Post | Inclusion, Independence

Accessibility and Workplace Rights & Resources

For those living with a disability who are looking to join or remain in the workforce, the MDA Resource Center offers valuable tips for finding a job that plays to…

Tags: Employment, Resources


Blog Post | Independence, Lifestyle

The Return of the Best Week of Summer

Looking Back to Move Ahead There is no better way to acknowledge The Year of Independence than taking a look back at our first in-person MDA Summer Camp sessions in…

Tags: Summer Camp


Blog Post | Advocacy, Inclusion, Independence

Year of Independence

Acosta CEO Brian Wynne talks with MDA about empowering employees with disabilities and raising money for MDA.

Tags: Employment