Archives
Simply Stated: What is Myasthenia Gravis (MG)?
Myasthenia gravis (MG) is a chronic neuromuscular disease characterized by muscle weakness that worsens after activity and improves after rest. MG is caused by an autoimmune reaction in which the…
Limited Edition DeMarini Bat to Raise Awareness for MDA
Anyone who knows softball and baseball the way that Kevin “Joey” Daily does, knows that DeMarini bats are some of the finest performance bats on the market. In addition to a variety…
Tags: Community, Fundraising
Happy Father’s Day!
I was honored to be asked to be a guest blogger to discuss the topic of Father’s Day. I have been fortunate enough to have a wonderful father all my…
Tags: Ambassadors, Amy, Community, Parenting, Relationship
Simply Stated: What Is Neuromuscular Disease?
Neuromuscular diseases are rare conditions that affect some part of the neuromuscular system, generally causing muscle weakness.
Tags: Healthcare, Simply Stated
Hiring Good PCAs
Living as an adult with a disability means trusting other people to assist you with daily tasks, some of which are intimate or make you feel vulnerable. How you approach…
MDA Tribute Tour Takes Houston: A “Family Reunion” to Remember
Thursday night, June 2, 2022, individuals from the Muscular Dystrophy Association (MDA), along with local volunteers, MDA families and MDA partners descended on Hotel ZaZa in Memorial City, Houston, Texas…
Book Launch Day – The Truth About Things That Suck
The Muscular Dystrophy Association, and the neuromuscular disease community has been a part of my extended family my entire life. And so today, on one of the biggest days of…
Eledon Announces Positive Topline Results from a Phase 2a Study of Tegoprubart to Treat ALS
On May 31, Eledon announced positive topline results from its Phase 2a clinical trial of the investigational therapy tegoprubart (formerly AT-1501) for treatment of amyotrophic lateral sclerosis (ALS).
Preparing for Your MDA Care Center Visit
Preparing for your MDA Care Center visit can ensure that all of your questions regarding your or your loved one’s care plan are answered.
Tags: Healthcare, MDA Care Centers
Simply Stated: What is Friedreich’s Ataxia (FRDA)?
Friedreich’s ataxia (FRDA) is an inherited neuromuscular disease that primarily impacts the nervous system and heart and affects about one in 50,000 people worldwide.
Tags: Healthcare, Innovation, Research, Simply Stated