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Featured Article | Independence, Lifestyle

7 Budget-Friendly Accessible Home Mod Strategies

For a more accessible home on a budget, focus on small home modifications that make a big impact.

Tags: Featured Content, Resources


Featured Article | News, Science + Research

Gene Therapy Options Grow With New Drug Approvals

Advancements in gene therapy help streamline a wave of drug approvals for the neuromuscular disease community.

Tags: Clinical Trials, Drug Approval, Drug Development, Featured Content, Gene Therapy, Genetic Testing, MDA Clinical and Scientific Conference, My Gene Therapy Journey, Newborn Screening, Research Advances


Featured Article | Science + Research

How MDA Invests in Research Success

MDA-supported research at different stages of drug development is directly linked to life-changing therapies for neuromuscular diseases.

Tags: Antisense Oligonucleotide, Drug Development, Exon Skipping, Featured Content, Grants, Innovation, Research


Featured Article | News, Science + Research

2023 MDA Clinical & Scientific Conference Makes an Impact

The 2023 MDA Clinical & Scientific Conference helped the scientific community and individuals living with neuromuscular diseases and their families stay informed on research and care.

Tags: Clinical Trials, Gene Therapy, MDA Clinical and Scientific Conference, Research


Featured Article | Finding a Diagnosis, Health, Personal Stories

Learning to Manage the Grief of a Progressive Disease

It’s normal to feel grief after being diagnosed with a neuromuscular disease or losing physical function to a progressive disease. Here’s how to handle it.

Tags: Featured Content, Mental Health


Blog Post | Finding a Diagnosis, Health, Lifestyle, Personal Stories, Science + Research

Understanding Nutrition and Metabolic Disease

Mark Tarnopolsky, MD, PhD, FRCP(C), professor of Pediatrics at McMaster Children’s Hospital in Hamilton, Ontario, remembers clearly one of the first patients he saw in practice almost 25 years ago…

Tags: Education, Healthcare, Resources, Staying Active


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Quest Podcast: Expert Accessible Travel Tips for Your Next Vacation

Summer is around the corner! In this Quest Podcast episode, we chat with two renowned travel writers who live with physical disabilities. Sylvia Longmire, creator of the Spin the Globe…

Tags: Accessible Air Travel, Community, Staying Active, Travel


Blog Post | Finding a Diagnosis, Health

Why Is It So Hard to Get a Diagnosis?

Doctors explain why it can take a long time to get a diagnosis for a neuromuscular disease and what you can do about it.

Tags: Featured Content, Healthcare, MDA Care Centers


Blog Post | Lifestyle, Personal Stories

MDA National Ambassador Blog-Letters from Leah: A Letter to Mothers

Leah (right) and her mother, Bevi (left) Dear Mothers, There is truly NO person in this world like a Mother. I can’t think of anyone who will stop the world…

Tags: Ambassadors, Community, Leah, Letters From Leah, Parenting


Blog Post | Health, Inclusion, Personal Stories

Women With Disabilities Need Gynecologists, Too

Women with neuromuscular diseases and other disabilities have the same needs for gynecologic exams, contraception, and pregnancy-related care as any other woman.

Tags: Featured Content, Healthcare