Archives
Family Inheritance
Most neuromuscular diseases are genetic disorders, we share how genetic neuromuscular diseases are inherited.
Life-Saving PJ’s Protocol Was Inspired by a Person With DMD
PJ’s Protocol outlines procedures that healthcare providers should follow for patients who depend on corticosteroids.
Simply Stated: What is Duchenne Muscular Dystrophy?
Research advances and the promise of better therapeutics on the horizon offer hope for people living with Duchenne muscular dystrophy.
Tags: Clinical Trials, Community Education, Drug Approval, Drug Development, Exon Skipping, Gene Therapy, Genetic Testing, Healthcare, Innovations, Research, Simply Stated
Working Together
How to establish and maintain good relationships with personal care attendants Anyone who lives with a neuromuscular disease that affects mobility knows that it often takes a village of caregivers…
Positive Relationships
How adults with neuromuscular disease can form and nurture healthy romantic relationships Trust. Honesty. Mutual respect. Affection. The key elements of a healthy romantic relationship are the same for…
A New Direction for Charcot-Marie-Tooth Disease
To learn more about Charcot-Marie Tooth, we speak with Stephan Zuchner, MD, PhD, a professor and chair of the department of Human Genetics at the University of Miami.
Leading the Quest for Change
For years, MDA has worked to empower people living with muscular dystrophy, ALS, and related neuromuscular diseases to reach their fullest potential. And while strides have been made through innovations…
The Hidden Benefits of Volunteering
Helping others can help you build valuable skills Blaine, a 6-year-old black lab, is assistance dog extraordinaire to Bella Andrade, 19, who lives with spinal muscular atrophy (SMA) and uses…
Tags: Community, Education, Employment, Resources, Thrive 365, Volunteers
Life at the Intersection of Disability and LGBTQ
Despite the challenges of navigating the intersectionality of disability and being LGBTQ, being part of the latter community brings an additional level of support for some people.
Tags: Community, Relationships, Resources, Transitions, Young Adults
International Day of Women and Girls in Science: MDA’s Spotlight on Dr. Angela Lek
In recognition of International Day of Women and Girls in Science, the MDA is honored to highlight the career and accomplishments of Dr. Angela Lek, PhD.
Tags: College, Employment, Innovation, Research, Year of Independence