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Featured Article | Health, Research

Family Inheritance

Most neuromuscular diseases are genetic disorders, we share how genetic neuromuscular diseases are inherited.

Tags: Featured Content, Gene Therapy, Genetic Testing, Healthcare, Research


Blog Post | Personal Stories, Science + Research

Life-Saving PJ’s Protocol Was Inspired by a Person With DMD

PJ’s Protocol outlines procedures that healthcare providers should follow for patients who depend on corticosteroids.

Tags: Community Education, Healthcare, Parenting, Relationships, Research


Blog Post | Science + Research

Simply Stated: What is Duchenne Muscular Dystrophy?

Research advances and the promise of better therapeutics on the horizon offer hope for people living with Duchenne muscular dystrophy.

Tags: Clinical Trials, Community Education, Drug Approval, Drug Development, Exon Skipping, Gene Therapy, Genetic Testing, Healthcare, Innovations, Research, Simply Stated


Featured Article | Independence, Lifestyle

Working Together

How to establish and maintain good relationships with personal care attendants Anyone who lives with a neuromuscular disease that affects mobility knows that it often takes a village of caregivers…

Tags: Featured Content, Personal Care Attendants, Relationships, Resources, Staying Active


Featured Article | Lifestyle

Positive Relationships

How adults with neuromuscular disease can form and nurture healthy romantic relationships   Trust. Honesty. Mutual respect. Affection. The key elements of a healthy romantic relationship are the same for…

Tags: Featured Content, Mental Health, Relationships


Featured Article | Health, News, Science + Research

A New Direction for Charcot-Marie-Tooth Disease

To learn more about Charcot-Marie Tooth, we speak with Stephan Zuchner, MD, PhD, a professor and chair of the department of Human Genetics at the University of Miami.

Tags: Clinical Trials, Gene Therapy, Healthcare, Innovation, MDA Q and A, Spotlight


Featured Article | Get Involved

Leading the Quest for Change

For years, MDA has worked to empower people living with muscular dystrophy, ALS, and related neuromuscular diseases to reach their fullest potential. And while strides have been made through innovations…

Tags: Community Education, Summer Camp, Year of Independence


Featured Article | Independence, Lifestyle, Personal Stories

The Hidden Benefits of Volunteering

Helping others can help you build valuable skills Blaine, a 6-year-old black lab, is assistance dog extraordinaire to Bella Andrade, 19, who lives with spinal muscular atrophy (SMA) and uses…

Tags: Community, Education, Employment, Resources, Thrive 365, Volunteers


Blog Post | Lifestyle, Personal Stories

Life at the Intersection of Disability and LGBTQ

Despite the challenges of navigating the intersectionality of disability and being LGBTQ, being part of the latter community brings an additional level of support for some people.

Tags: Community, Relationships, Resources, Transitions, Young Adults


Blog Post | Personal Stories, Science + Research

International Day of Women and Girls in Science: MDA’s Spotlight on Dr. Angela Lek

In recognition of International Day of Women and Girls in Science, the MDA is honored to highlight the career and accomplishments of Dr. Angela Lek, PhD.

Tags: College, Employment, Innovation, Research, Year of Independence