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Advocacy for the neuromuscular disease community is just one of the key ways MDA works to support the neuromuscular disease community. To expand our impact and undertake projects of importance…

In this episode of Quest Podcast, we chat with three of our MDA Ambassadors. Nora is a passionate animal advocate and lives with Selenon (SEPN1)-related myopathy (RM). Justin is a…

K.L. Cleeton is an entrepreneur, poker professional, and social media influencer committed to empowering individuals to realize their potential. He focuses on startup development and motivates others to overcome their…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

In recognition of International Day of Women and Girls in Science, the Muscular Dystrophy Association (MDA) is honored and excited to highlight the career and accomplishments of Dr. Kathryn Moss,…

Gabrielle Runyon is a 22-year-old Kentucky native who currently goes to the illustrious Tennessee State University. She is obtaining her master’s in counseling with a concentration in clinical mental health.…

In this Quest Podcast episode, we chat with a certified Life Coach who lives with spinal muscular atrophy. Amber Bosselman has devoted her career to providing living skills for individuals…

Abby Dreyer is an honors student at Eastern Connecticut State University who lives with spinal muscular atrophy (SMA). She enjoys learning other languages, trying new things, writing, watching movies, and staying…

Myotonic dystrophy (DM) is a type of muscular dystrophy that affects about 1 in 8,000 people worldwide. DM is characterized by progressive muscle loss and weakness, but can also affect…

With a new Congress and Administration in office, it’s safe to say that 2025 is going be a year full of change. But what remains consistent is MDA’s commitment to…