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Blog Post | Get Involved, Inclusion, Independence, Lifestyle, News, Personal Stories

Getting to Know Your 2025 MDA National Ambassadors

MDA’s Ambassadors are pivotal to our mission: empowering people living with neuromuscular disease to live longer, more independent lives. We strive for our mission through care, research, and advocacy. Our…

Tags: Ambassadors, Community, Ira, Lily, MDA Ambassador Program, MDA Ambassadors, National Ambassadors, Relationships, Young Adults


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

Breaking Barriers in Higher Education: My Journey as a Student with Muscular Dystrophy

Serena Desiderio, from Gilbert, Arizona, is a senior at the University of Arizona studying Physiology and Medical Sciences with an emphasis in Exercise Physiology and a minor in Psychology. Diagnosed…

Tags: College, College Experience, Community, Education, Mental Health, Relationships, Year of Independence, Young Adults


Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Music is the Best Medicine

Richard Fry is an aspiring writer and poet. He is first and foremost a musician. Through writing and folk music, Richard strives to inspire admiration for the innate beauty of…

Tags: Ambassador Guest Blog, Ambassadors, Community, Mental Health, Resources, Young Adults


Blog Post | Advocacy, Inclusion, Independence, News, Tools& Resources

Everything You Need to Know About the DOT Ruling on Accessible Air Travel

At the end of 2024, the Department of Transportation (DOT) released a final rule aimed at improving the air travel experience of wheelchair users. This rule enacted major changes that…

Tags: Accessible Air Travel, Advocacy Updates


Blog Post | Get Involved, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Unexpectedly Finding Nakama

34-year-old Megan Jennings was diagnosed with SMA at the age of 18 months and was raised to never let her diagnosis hold her back. Megan has a bachelor’s degree in…

Tags: Ambassador Guest Blog, Ambassadors, Community, Resources, Young Adults


Blog Post | Health, Lifestyle

Picking AFO Braces Is Like Buying Jeans: Find Your Perfect Fit

A guide to finding your AFO perfect fit and tips to improve your mobility, comfort, confidence, and style with braces.

Tags: Equipment and Assistive Devices, Featured Content, Healthcare


Blog Post | Get Involved, Personal Stories

Decades of Making a Difference: One Volunteer’s Lasting Impact

A young Jon Coppinger Jon Coppinger’s commitment to serving others and raising funds for the neuromuscular disease community began more than four decades ago. The now 51-year-old, the Cleveland, Tennessee…

Tags: Community, Fundraising, Summer Camp, Volunteers


Blog Post | Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Ambassadors, Community, Education, Healthcare, Ira, Leah, Parenting, Quest Podcast, Research, Resources, Transitions


Blog Post | Independence, Lifestyle, Personal Stories

Starting the New Year with Intention

The start of a new year often leads people to reflect on the accomplishments and challenges of the past year – as well as look forward to a fresh start…

Tags: Advocacy, Ambassadors, Community


Blog Post | Advocacy, Get Involved, Independence, News

Celebrating a Milestone Year in MDA Advocacy

From major wins to improve air travel for people living with disabilities to ensuring the neuromuscular community had all the resources needed to vote in this year’s election, 2024 was…

Tags: Accessible Air Travel, Advocacy Updates, Community