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MDA Ambassador Mike Huddleston Mike Huddleston is 60 years old. He is originally from California and now lives in Severn, MD.  Mike was diagnosed with spinal muscular atrophy (SMA) Type…

MDA Advocacy offers many ways to get involved in the advocacy process. Our primary goal is to empower people living with neuromuscular disease to live, work, and play while leading…

MDA National Ambassador Leah Z. Hello friends, As we say goodbye to 2023, we welcome a New Year. I am so excited to see what 2024 has in store! I…

The 2024 MDA Clinical & Scientific Conference is just around the corner. We’re looking forward to you joining us, as we showcase groundbreaking research and clinical accomplishments by dedicated professionals…

Experts recommend asking these nine questions before joining a clinical trial so you know what to expect.

Study Coordinators at CureDuchenne Link® are seeking individuals living with Duchenne or Becker muscular dystrophy (DMD or BMD) or carriers to participate in a noninterventional study. The objective of this study is…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Collagen VI-related dystrophy (COL6-RD) is a rare genetic muscle disease caused by defects in one of three genes that form a triple helix protein (collagen VI) found in the extracellular…

MDA’s Ambassadors are pivotal to our mission: empowering people living with neuromuscular disease to live longer, more independent lives. We strive to fulfill our mission through care, research, and advocacy.…

The MDA MOVR program has paired with Mitsubishi Tanabe Pharma America, Inc. (MTPA) to collaborate on a remote observational research study focusing on Amyotrophic Lateral Sclerosis (ALS). The newly developed…