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Understanding Hypotonia or Low Muscle Tone in Infants
A look at various neuromuscular diseases that can cause hypotonia, or floppy infant syndrome, in babies and how to get a diagnosis.
Tags: Clinical Trials, Genetic Testing, Research
MDA Announces Youth Mentoring Program
MDA is committed to providing program options for teens and young adults that build independence and confidence while fostering lifelong relationships. The MDA Mentorship Program provides a unique opportunity for…
Registration for the 2024 MDA Clinical & Scientific Conference Now Open!
What? When? Where? MDA is pleased to share that registration for the 2024 MDA Clinical & Scientific Conference being held March 3-6, 2024, at the Hilton Orlando in Orlando, FL…
Quest Podcast: Accessible Air Travel and Advocacy Updates
In this Quest Podcast episode, we chat with Mark Fisher, MDA’s Director of Advocacy Engagement and Michael Lewis, MDA’s Director of Disability Policy, an advocate who lives with physical disabilities.…
MDA Ambassador Guest Blog: Being Unique is Powerful
It feels like just yesterday that I was meeting my husband Jamie for the first time in the science hall of our high school. That was over 30 years ago!…
Clinical Trial Alert: Phase 2 Study of Oral Ifetroban in Individuals with DMD
Researchers at Cumberland Pharmaceuticals Inc. are seeking boys and men living with Duchenne muscular dystrophy (DMD) to participate in a phase 2 clinical trial to evaluate the safety and efficacy of…
Tags: Clinical Trial Alert
How Palliative Care Can Support Your Health Journey
Starting palliative care early can offer relief from symptoms and stress.
Advances in the Treatment of Friedreich Ataxia
A Q&A about Friedreich ataxia with Barry Byrne, MD, PhD, and David Lynch, MD, PhD
How a Positive Attitude Benefits an Army Administrator With SMA
Life experiences and a positive attitude taught Ken Yorgan not to underestimate himself.
MDA Advocacy: Influencing Change in Washington D.C.
MDA’s advocacy team ensures the neuromuscular disease community is heard in Washington