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Quest Podcast: Catching Up with Bill Crossland
For our February Valentineβs Day Quest Podcast, we catch up with Bill Crossland, a writer, director, producer, and actor who lives with muscular dystrophy. Bill shares his insights and experiences…
Tags: Quest Podcast
How MDA Prepares and Supports Summer Camp Volunteers
MDA Summer Camp is a magical place where truly anything is possible. Every summer, youth living with neuromuscular diseases have the opportunity to attend week-long sessions of overnight camp filled…
MDA Expands Community Access to Resources with Language Translation Service
MDA’s mission is to empower the people we serve to live longer, more independent lives. One way that we do this is through support-centered check-in calls and touchpoints. In line…
Tags: Community, MDA Resource Center
The Good and Bad of Using Public Transit With a Disability
Public transportation can mean independence for people with disabilities if you know how to use it β and how to advocate for accessibility.
Tags: Resources, Thrive 365
Q&A: Understanding Congenital Muscular Dystrophy
Congenital muscular dystrophy (CMD) expert Dean Burkin, PhD, answers questions about diagnosis, treatments, and the latest research.
Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Exon Skipping, Gene Therapy, Research, Research Advances, Spotlight
Muscular Dystrophy and Dating
These tips from community members and a mental health expert can help you navigate dating and sex with a neuromuscular disease.
MDAβs Art Collection Celebrates the Talents of Our Community
The MDA Art Collection showcases the talents of artists, young and old, living with muscular dystrophy and other neuromuscular diseases.
Tags: Community
Love and Marriage With a Disability
Kathy LeMieux lives with spinal muscular atrophy (SMA) and shares her journey finding love with a disability.
Tags: From Where I Sit, Relationships
MOVR Data Hub Aims to Improve Research and Care
Neuromuscular diseases are a diverse group of rare, mostly genetic conditions. This has made developing treatments challenging. However, investments in rare disease research by private and public agencies, including MDA,…
The Truth About Nutrition and Neuromuscular Disease
What is a healthy diet? Thatβs not a simple question to answer because it depends on a lot of factors, including if youβre living with a neuromuscular disease. For example,…
Tags: Featured Content, Nutrition