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If you have a neuromuscular disease, is there anything more energy-draining than taking a shower or bath? It’s important, though, and not just because you don’t want to stink up the…

On Sept 29, the US Food and Drug Administration (FDA) granted approval of sodium phenylbutyrate/taurursodiol (Relyvrio) for the treatment of people with amyotrophic lateral sclerosis (ALS). To date, Relyvrio is…

Learn how the ADA protects rights for job applicants during the interviewing and hiring processes.

A man with Duchenne muscular dystrophy (DMD) won his right to live independently. Young adults with disabilities should know about this legal case.

Limb-girdle muscular dystrophy (LGMD) is a diverse group of inherited disorders that cause progressive weakness in the hip and shoulder muscles. Weakening and thinning of these muscles in LGMD can lead…

The 2023 MDA Clinical & Scientific Professional Conference, which is consistently unsurpassed in terms of impact, will take place next March in Dallas Texas. In 2022, the conference had 1,261…

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. This month,…

On Sept.19, the Muscular Dystrophy Association (MDA) announced the awarding of 70 new grants totaling over $17 million toward neuromuscular disease research. The newly funded projects aim to advance research…

The Double Take Fashion Show, a collaboration between the spinal muscular atrophy (SMA) community, Genentech’s SMA My Way, and Open Style Lab (OSL), kicked off 2022 New York Fashion Week…

Election Day is Tuesday, November 8th.  This year, all 435 seats in the U.S. House of Representatives, 35 Senate seats, and 36 gubernatorial seats are on the ballot, in addition…