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Blog Post | Advocacy, Inclusion, Independence

Election 2022: Know Your Rights

Election Day is Tuesday, November 8th.Β  This year, all 435 seats in the U.S. House of Representatives, 35 Senate seats, and 36 gubernatorial seats are on the ballot, in addition…

Tags: Community, Resources


Blog Post | Research

Research Study Alert: Observational Study of MRI Measures of Bone Quality in People with DMD

Researchers at University of Florida areΒ seeking boys living with DMD to participate in a study designed to identify new imaging (MRI) measures that could be used to test drugs or…

Tags: Research Study Alert


Blog Post | Research

Research Study Alert: Survey About Stigma and Coping Skills in Adults with SMA

Researchers at Saint Elizabeth University areΒ seeking adults with spinal muscular atrophy (SMA) to participate in a survey about life with SMA. The goal of this survey is to help understand…

Tags: Research Study


Blog Post | Independence, Lifestyle, Personal Stories

Quest for Success – College Edition: Maanav Gupta

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: β€œQuest for Success”. This month,…

Tags: College, Community, Education, Quest for Success, Year of Independence


Blog Post | Health, News, Science + Research

The Latest on Newborn Screening

It’s simple. The Newborn Screening Program saves lives. When babies are screened for certain neuromuscular conditions early, it leads to better outcomes. As we recognize both Newborn Screening Awareness Month…

Tags: Advocacy Updates, Newborn Screening


Blog Post | Health

5 Tips for Breathing Easy in Cold Weather

Fall and winter tips for cold weather respiratory health from a respiratory therapist.

Tags: Featured Content, Healthcare


Blog Post | Independence, Lifestyle, Personal Stories

Quest for Success: Jax Cowles

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: β€œQuest for Success”. Success looks…

Tags: College, Community, Education, Employment, Quest for Success, Year of Independence


Blog Post | Get Involved, Personal Stories

More Than Just Fun & Games – Charlie Mabry is Streaming for a Cause

Charlie Mabry, a video game streamer known as CharlieHarley_1 to his growing base of followers on Β TikTok and Twitch, is using his passion for video games to build a community…

Tags: Ambassadors, Community, Fundraising, Let's Play, Staying Active


Blog Post | Health, Research, Science + Research

Current State of SMA Therapy: Navigating Treatment Options

Over the past five years, medical and scientific advances have increased overall health and life expectancy in people with the neuromuscular disease (NMD) spinal muscular atrophy (SMA). SMA causes progressive…

Tags: Healthcare, Resources


Blog Post | Get Involved, News, Personal Stories

1st Annual Hayes Festival and Motorcycle Rally Unites Southeastern Wisconsin in Support of MDA

On September 23, 2022, Hayes Performance Systems in Mequon, WI, will be hosting its First Annual Hayes Festival and Motorcycle Rally in support of the Muscular Dystrophy Association (MDA). Hayes…

Tags: Ambassadors, Community, Fundraising