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Election 2022: Know Your Rights
Election Day is Tuesday, November 8th.Β This year, all 435 seats in the U.S. House of Representatives, 35 Senate seats, and 36 gubernatorial seats are on the ballot, in addition…
Research Study Alert: Observational Study of MRI Measures of Bone Quality in People with DMD
Researchers at University of Florida areΒ seeking boys living with DMD to participate in a study designed to identify new imaging (MRI) measures that could be used to test drugs or…
Tags: Research Study Alert
Research Study Alert: Survey About Stigma and Coping Skills in Adults with SMA
Researchers at Saint Elizabeth University areΒ seeking adults with spinal muscular atrophy (SMA) to participate in a survey about life with SMA. The goal of this survey is to help understand…
Tags: Research Study
Quest for Success – College Edition: Maanav Gupta
As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: βQuest for Successβ. This month,…
The Latest on Newborn Screening
Itβs simple. The Newborn Screening Program saves lives. When babies are screened for certain neuromuscular conditions early, it leads to better outcomes. As we recognize both Newborn Screening Awareness Month…
5 Tips for Breathing Easy in Cold Weather
Fall and winter tips for cold weather respiratory health from a respiratory therapist.
Tags: Featured Content, Healthcare
Quest for Success: Jax Cowles
As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: βQuest for Successβ. Success looks…
More Than Just Fun & Games – Charlie Mabry is Streaming for a Cause
Charlie Mabry, a video game streamer known as CharlieHarley_1 to his growing base of followers on Β TikTok and Twitch, is using his passion for video games to build a community…
Tags: Ambassadors, Community, Fundraising, Let's Play, Staying Active
Current State of SMA Therapy: Navigating Treatment Options
Over the past five years, medical and scientific advances have increased overall health and life expectancy in people with the neuromuscular disease (NMD) spinal muscular atrophy (SMA). SMA causes progressive…
Tags: Healthcare, Resources
1st Annual Hayes Festival and Motorcycle Rally Unites Southeastern Wisconsin in Support of MDA
On September 23, 2022, Hayes Performance Systems in Mequon, WI, will be hosting its First Annual Hayes Festival and Motorcycle Rally in support of the Muscular Dystrophy Association (MDA). Hayes…
Tags: Ambassadors, Community, Fundraising