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Clinical Trial Alert: Phase 3 Study of IgPro20 in Adults with Dermatomyositis
Researchers partnering with CSL Behring, are seeking adults living with dermatomyositis to participate in a phase 3 clinical trial to evaluate the safety, efficacy, and duration of effect of IgPro20 (human…
Back-to-(Grad)-School
Is it back to school already? It feels like almost yesterday that I graduated from Worcester Polytechnic Institute (WPI), but even so, I’ll soon be attending Boston University (BU) in…
Ethan LyBrand and Ben Schwartz Share a Laugh for National Tell a Joke Day
Ethan LyBrand loves a good joke. During the start of the COVID-19 pandemic, Ethan embarked on a virtual crusade to bring happiness to the world by sharing a joke a…
Tags: Ambassadors, Community
What is the MDA Resource Center? An Executive Q&A
What is an MDA Care Center? I’m having symptoms of a muscle disease and I’m not sure what to do or who to talk to. My child was diagnosed with…
Back-to-School Beauty Hacks with Wheelchair Barbie
Madison Lawson is passionate about hair, make-up, and fashion, and the importance of inclusivity in the fashion and beauty industry. Born with spinal muscular atrophy (SMA), she became interested in…
Clinical Trial Alert: Phase 2 Study of Oral Ifetroban in Individuals with DMD
Researchers at Cumberland Pharmaceuticals Inc. are seeking boys and men living with Duchenne muscular dystrophy (DMD) to participate in a phase 2 clinical trial to evaluate the safety, and efficacy of…
August is National Make-a-Will Month
When most people think of August, they think of the end of summer and back to school, but did you know that August is also National Make-a-Will month? Whether you’re…
Tags: Mental Health, Relationships
Quest for Success: Jason Morgan
As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. Success looks…
National Ambassador Shares the Value of Friendship
Amy and Shelli It’s an honor to be able to share my thoughts on friendship and what that means to me to celebrate friendship day! For those of you who…
Tags: Ambassadors, Community, Relationships, Staying Active
Navigating School Supports with MDA
As the days become longer and the fireflies come out to play, it might be hard to start thinking about the new school year right around the corner. But when…
Tags: Education, MDA Resource Center, Parenting, Resources