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Blog Post | Get Involved, Personal Stories

MDA Welcomes National Volunteer Month with Gratitude

MDA celebrates National Volunteer Month by thanking our volunteers who work tirelessly to support MDA’s mission and the families we serve.

Tags: Community, Fill the Boot, Fundraising, Muscle Walk, Summer Camp, Team Momentum, Volunteers


Blog Post | Personal Stories

Quest for Success: Tana Zwart

Tana Zwart, a freelance media manager, has made an art of adapting to a changing job market while pursuing and achieving her goals.

Tags: College, Community, Education, Employment, Quest for Success, Year of Independence


Blog Post | Science + Research

Simply Stated: What is Myotonic Dystrophy?

Similar to other forms of muscular dystrophy, Myotonic Dystrophy (DM) is characterized by progressive muscle loss and weakness.

Tags: Clinical Trials, Healthcare, Innovation, Research, Resources, Simply Stated


Blog Post | News

Living Through War in Ukraine with a Neuromuscular Disease

The war in Ukraine destroys hospitals and care centers, threatening the lives of those with neuromuscular disease.

Tags: Caregiving, Community, Healthcare, Parenting, Resources


Blog Post | Lifestyle

How to Set Goals for Personal Growth and Wellness

Specific and trackable goals give you a roadmap to your destination, and working toward a goal can help you grow and improve wellbeing.

Tags: Mental Health, Resources


Blog Post | Get Involved, Personal Stories

MDA Shamrock’s 40th Birthday T-shirt: The Mind Behind the Design

To commemorate the 40thΒ Birthday of MDA Shamrocks with a special edition T-shirt, the MDA enlisted the talent and expertise of freelance graphic designer, Dustin Clark. Dustin, a 28-year-old designer and…

Tags: Education, Employment, Fundraising, Shamrocks, Year of Independence


Blog Post | Science + Research

2022 Clinical & Scientific Conference: March 16 Highlights

On the last day of 2022 MDA’s Clinical & Scientific Conference, the theme is clinical trials in neuromuscular disease (NMD).

Tags: Clinical Trials, Drug Development, Exon Skipping, Healthcare, Innovation, MDA Clinical and Scientific Conference


Blog Post | Science + Research

2022 Clinical & Scientific Conference March 15 Highlights

The three major themes of the second day of MDA’s Clinical & Scientific Conference sessions were (1) therapeutic strategies to treat NMDs, (2) clinical trial design and implementation, and (3)…

Tags: Healthcare, Innovation, MDA Clinical and Scientific Conference, Research


Blog Post | Science + Research

2022 Clinical & Scientific Conference March 14 Highlights

A recap and highlights from the first full day of sessions at MDA’s 2022 Clinical & Scientific Conference.

Tags: Amy, Healthcare, Innovation, MDA Clinical and Scientific Conference, Research


Blog Post | Science + Research

Clinical Trial Alert: Phase 1b/2a Study of WVE-N531 in a Subset of People Living with DMD

Researchers areΒ seeking boys living with DMD caused by gene mutations amenable to exon 53 skipping interventions to participate in a clinical trial.

Tags: Clinical Trial Alert, Exon Skipping, Healthcare, Innovation, Research