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Staying Connected with MDA
To stay connected with MDA Care Specialists and receive the latest updates on MDA news and events, it is important that you ensure that your contact information is up to…
MDA Summer Camp: Zach’s Note to Younger Self
In a note to his younger self, Zach Jorgenson shares how his experience at MDA Summer Camp impacted his life.
Tags: Relationships, Staying Active, Summer Camp, Volunteers
Quest for Success: Nicole Lahoud
Nicole Lahoud, a high school teacher, offers unique insight into the value of structuring a classroom to meet the needs of everyone.
Tags: College, Education, Employment, Healthcare, Parenting, Personal Care Attendants, Quest for Success, Resources, Year of Independence
Ensuring Economic Independence for the Neuromuscular Community
Creating true economic independence is part of a new MDA advocacy initiative called Ensuring Economic Independence.
Research Study Alert: Survey of Pain Self-Management and Well-Being in People with General Pain or with Myotonic Dystrophy
Researchers at Newcastle University are seeking adults living with general pain or with myotonic dystrophy (DM) to participate in a survey.
Tags: Research Study Alert
View From the Top
Hiker Skye Lemmen raised funds for MDA while trekking the Pacific Crest Trail When Skye Lemmen, of Grand Rapids, Michigan, decided to hike the Pacific Crest Trail, she knew she…
Family Inheritance
Most neuromuscular diseases are genetic disorders, we share how genetic neuromuscular diseases are inherited.
Life-Saving PJ’s Protocol Was Inspired by a Person With DMD
PJ’s Protocol outlines procedures that healthcare providers should follow for patients who depend on corticosteroids.
Simply Stated: What is Duchenne Muscular Dystrophy?
Research advances and the promise of better therapeutics on the horizon offer hope for people living with Duchenne muscular dystrophy.
Tags: Clinical Trials, Community Education, Drug Approval, Drug Development, Exon Skipping, Gene Therapy, Genetic Testing, Healthcare, Innovations, Research, Simply Stated
Working Together
How to establish and maintain good relationships with personal care attendants Anyone who lives with a neuromuscular disease that affects mobility knows that it often takes a village of caregivers…