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Featured Article | Health

Breaking Healthcare Barriers

MDA Care Centers strive to expand access to quality care

Tags: Featured Content, Healthcare, MDA Care Centers, MDA Resource Center, National Connections Program, Resources, Summer Camp


Featured Article | Personal Stories, Science + Research

A Little Piece of the Future

Chelsea Moeller and her mother, Laura, both participated in the phase 2b Fulcrum ReDUX4 clinical trial last year. My experience participating in an FSHD clinical trial

Tags: Clinical Trials, From Where I Sit, Relationships


Blog Post | News, Science + Research

The Search for ALS Treatments Continues

May isΒ Amyotrophic Lateral Sclerosis (ALS)Β Awareness Month, and while this past year was different β€” given the global pandemic we all endured β€” the research and support for finding new treatments…

Tags: Clinical Trials, Research


Featured Article | Health

Support for Your Journey

The MDA Resource Center connects people in the neuromuscular disease community with helpful resources and information

Tags: Web Exclusive


Featured Article | Health, Personal Stories

Parent Pressure

Hunt family Coping skills to help you handle stress when raising a child with neuromuscular disease

Tags: MDA Care Centers, MDA Resource Center, Mental Health, Parenting, Relationships, Resources


Blog Post | Science + Research

Help and Hope for Friedreich’s Ataxia

Bella, a 15-year-old in Fort Worth, Texas, loves jellyfish, horses, anime, Billie Eilish, reading sci-fi and fantasy, and making art. But living with Friedreich’s ataxia (FA)Β makes it hard for her…

Tags: Healthcare, Innovations, Research, Young Adults


Blog Post | News, Personal Stories

Introducing New MDA National Ambassador Keisha Greaves and Checking in With Ambassador Ethan LyBrand

Beginning in the early 1950s, when public awareness and understanding of muscular dystrophy and related neuromuscular diseases were extremely limited, MDA began calling upon individuals living with these diseases to…

Tags: Ambassadors


Blog Post | Health

Early Warning Signs Help Spot Neuromuscular Disease in Children

Josh Corbett[Image description: Josh, a light-skinned boy with short brown hair, stands in front of a brick wall wearing a black jacket, gray shirt, red shorts, and blue sneakers.]  …

Tags: Healthcare, Parenting


Blog Post | News, Science + Research

Clinical Trial Alert: Phase 2 Study of Pegcetacoplan in Adults with Sporadic ALS (MERIDIAN)

Researchers at Apellis Pharmaceuticals areΒ seeking individuals living with sporadic amyotrophic lateral sclerosis (ALS) to participate in a two-year phase 2 trial (MERIDIAN) to determine the efficacy of the investigational drug…

Tags: Clinical Trial Alert, Clinical Trials, Drug Development, Research


Featured Article | Health, Lifestyle

Advance Healthcare Directives: Make Your Wishes Known

When you can’t speak for yourself, these important documents help you protect yourself and your dependents

Tags: Caregiving, Insurance, Parenting, Resources, Web Exclusive