Archives
Smart Steps to Take in a Medical Emergency
When you live with rare a neuromuscular disease, you should know what steps to take in a medical emergency with first responders and in the hospital.
Tags: Featured Content, Healthcare
DMD Gene Therapy Approval Ignites Hope
The FDA’s approval of Elevidys, the first gene therapy for Duchenne muscular dystrophy (DMD) brings hopes and concerns for families in the MDA community.
What You Need to Know About Feeding Tubes and Nutrition
When a neuromuscular disease impairs chewing and swallowing, consider a feeding tube for good nutrition.
Tags: Featured Content, Healthcare, Nutrition
Summertime Travel Go-Anywhere Products and Tips
Packing for vacation when you live with a disability requires a little extra planning and preparation. Travel often demands additional considerations to provide easy access to essentials and ensure that…
How One Family’s Myasthenia Gravis Journey is Helping Others
Charlotte and Elizabeth Madole. For many individuals living with a rare disease, the road to diagnosis can be extremely challenging, especially when it involves two co-existing diseases where two parts…
Tags: Community, Healthcare, MDA Care Centers, Parenting, Research
MDA Ambassador Guest Blog: Taking Care of Our Mental Health
I feel like our mental health is something we don’t discuss enough. I want to share how Muscular Dystrophy has affected my mental health, because honestly speaking, there have been…
Tips for Adults With Disabilities Who Want to Live on Their Own
Adults with disabilities who want to live independently are finding that community services and self-advocacy can help them get their own place.
Tags: Community, Featured Content, Finance, Resources, Transitions, Young Adults
How MDA Invests in Research Success
MDA-supported research at different stages of drug development is directly linked to life-changing therapies for neuromuscular diseases.
Tags: Antisense Oligonucleotide, Drug Development, Exon Skipping, Featured Content, Grants, Innovation, Research
Learning to Manage the Grief of a Progressive Disease
It’s normal to feel grief after being diagnosed with a neuromuscular disease or losing physical function to a progressive disease. Here’s how to handle it.
Tags: Featured Content, Mental Health
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Tags: Community, In Case You Missed It