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Featured Article | Independence, Lifestyle

Tips for Adults With Disabilities Who Want to Live on Their Own

Adults with disabilities who want to live independently are finding that community services and self-advocacy can help them get their own place.

Tags: Community, Featured Content, Finance, Resources, Transitions, Young Adults


Featured Article | Science + Research

How MDA Invests in Research Success

MDA-supported research at different stages of drug development is directly linked to life-changing therapies for neuromuscular diseases.

Tags: Antisense Oligonucleotide, Drug Development, Exon Skipping, Featured Content, Grants, Innovation, Research


Featured Article | Finding a Diagnosis, Health, Personal Stories

Learning to Manage the Grief of a Progressive Disease

It’s normal to feel grief after being diagnosed with a neuromuscular disease or losing physical function to a progressive disease. Here’s how to handle it.

Tags: Featured Content, Mental Health


Blog Post | Lifestyle, News, Personal Stories

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Community, In Case You Missed It


Blog Post | Science + Research

The Value of Natural History Studies for Neuromuscular Disease

In order to prepare for drug development in the neuromuscular disease (NMD) field, some researchers are focusing on natural history studies to better understand these rare diseases. Natural history studies…

Tags: Clinical Trials, Drug Development, Innovation, Research, Research Advances, Resources


Blog Post | Health

What You Need to Know About Substance Use Disorder

The CDC estimates that 40.3 million individuals in America experienced Substance Use Disorder (SUD) in the year 2020. SUD, also commonly referred to as substance abuse or addiction, is a…

Tags: Community, Healthcare, Mental Health, Resources


Blog Post | Science + Research

2023 MDA Clinical and Scientific Conference Starts Strong

The first day of the 2023 MDA Clinical & Scientific Conference covered FDA approval, gene therapy, ultra-rare diseases, and more.

Tags: Clinical Trials, Drug Development, Featured Content, Gene Therapy, Innovation, MDA Clinical and Scientific Conference, Research


Blog Post | Health, Science + Research

Quest Podcast: The Changing Landscape of Neuromuscular Care

As new treatments, cutting edge research, and a better understanding of genetic sequencing and mutations bring innovative change to the treatment landscape for neuromuscular disease, understanding your options and accessing…

Tags: Drug Development, Gene Therapy, Genetic Testing, Healthcare, Innovation, MDA Care Centers, My Gene Therapy Journey, Quest Podcast, Research, Research Advances


Featured Article | Advocacy, Independence

The Good and Bad of Using Public Transit With a Disability

Public transportation can mean independence for people with disabilities if you know how to use it — and how to advocate for accessibility.

Tags: Resources, Thrive 365


Featured Article | Lifestyle, Personal Stories

Muscular Dystrophy and Dating

These tips from community members and a mental health expert can help you navigate dating and sex with a neuromuscular disease.

Tags: Featured Content, Relationships, Young Adults