Archives
Tips for Adults With Disabilities Who Want to Live on Their Own
Adults with disabilities who want to live independently are finding that community services and self-advocacy can help them get their own place.
Tags: Community, Featured Content, Finance, Resources, Transitions, Young Adults
How MDA Invests in Research Success
MDA-supported research at different stages of drug development is directly linked to life-changing therapies for neuromuscular diseases.
Tags: Antisense Oligonucleotide, Drug Development, Exon Skipping, Featured Content, Grants, Innovation, Research
Learning to Manage the Grief of a Progressive Disease
It’s normal to feel grief after being diagnosed with a neuromuscular disease or losing physical function to a progressive disease. Here’s how to handle it.
Tags: Featured Content, Mental Health
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Tags: Community, In Case You Missed It
The Value of Natural History Studies for Neuromuscular Disease
In order to prepare for drug development in the neuromuscular disease (NMD) field, some researchers are focusing on natural history studies to better understand these rare diseases. Natural history studies…
What You Need to Know About Substance Use Disorder
The CDC estimates that 40.3 million individuals in America experienced Substance Use Disorder (SUD) in the year 2020. SUD, also commonly referred to as substance abuse or addiction, is a…
Tags: Community, Healthcare, Mental Health, Resources
2023 MDA Clinical and Scientific Conference Starts Strong
The first day of the 2023 MDA Clinical & Scientific Conference covered FDA approval, gene therapy, ultra-rare diseases, and more.
Tags: Clinical Trials, Drug Development, Featured Content, Gene Therapy, Innovation, MDA Clinical and Scientific Conference, Research
Quest Podcast: The Changing Landscape of Neuromuscular Care
As new treatments, cutting edge research, and a better understanding of genetic sequencing and mutations bring innovative change to the treatment landscape for neuromuscular disease, understanding your options and accessing…
Tags: Drug Development, Gene Therapy, Genetic Testing, Healthcare, Innovation, MDA Care Centers, My Gene Therapy Journey, Quest Podcast, Research, Research Advances
The Good and Bad of Using Public Transit With a Disability
Public transportation can mean independence for people with disabilities if you know how to use it — and how to advocate for accessibility.
Tags: Resources, Thrive 365
Muscular Dystrophy and Dating
These tips from community members and a mental health expert can help you navigate dating and sex with a neuromuscular disease.