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Genetic counselors help individuals and families understand genetic testing and empower them to make decisions about their health.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

It might be an off-year election, but many states and localities are still holding important contests that can shape policy in your area. Therefore, it’s important that your voice is…

Awareness is spreading that women and girls can have Duchenne muscular dystrophy symptoms, but there’s more work to do.

Morgan Roth, Chief Marketing Officer at MDA When Morgan Roth went to see the new Barbie movie with her daughter, she was not expecting the film to have a significant,…

It is well known that the earlier a disease is diagnosed and treated, the better the outcomes. Consequently, for neuromuscular diseases, where damage to the muscle, neurons, or sometimes both,…

Dave Leatherman and his Service dog Marv Dave Leatherman is a devoted husband and father from Cedar Rapids, IA, living with MYH7-Myopathy, diagnosed as an adult in Feb. of 2015. …

MDA Summer Camp provides one magical week each year where children living with neuromuscular disease can gain independence, try new activities, make friends, laugh, sing, smile, grow, and just have…

Hello. Leah Z. hitting a punching bag In today’s letter, I will be sharing the many reasons why physical activity is so important to me.  I’m not sure you know…

Sometimes we think we have life figured out but then in the blink of an eye things can change.  I lived 30 years of my life healthy and active.  Sports,…