Archives
Q&A: Understanding Congenital Muscular Dystrophy
Congenital muscular dystrophy (CMD) expert Dean Burkin, PhD, answers questions about diagnosis, treatments, and the latest research.
Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Exon Skipping, Gene Therapy, Research, Research Advances, Spotlight
Muscular Dystrophy and Dating
These tips from community members and a mental health expert can help you navigate dating and sex with a neuromuscular disease.
MDA’s Art Collection Celebrates the Talents of Our Community
The MDA Art Collection showcases the talents of artists, young and old, living with muscular dystrophy and other neuromuscular diseases.
Tags: Community
Love and Marriage With a Disability
Kathy LeMieux lives with spinal muscular atrophy (SMA) and shares her journey finding love with a disability.
Tags: From Where I Sit, Relationships
MOVR Data Hub Aims to Improve Research and Care
Neuromuscular diseases are a diverse group of rare, mostly genetic conditions. This has made developing treatments challenging. However, investments in rare disease research by private and public agencies, including MDA,…
The Truth About Nutrition and Neuromuscular Disease
What is a healthy diet? That’s not a simple question to answer because it depends on a lot of factors, including if you’re living with a neuromuscular disease. For example,…
Tags: Featured Content, Nutrition
Tips and Tricks to Avoid Frustration with Getting and Repairing Medical Equipment
If you’ve tried to order a new power wheelchair or other mobility device, you may have experienced delays, product shortages, or other frustrations. “We’re still experiencing the very same issues…
MDA Makes Strides in DEI
Disability is diversity MDA believes that true diversity cannot be achieved without the presence of those who live with disabilities. So, we are making progress in furthering diversity, equity, and…
Tags: Community, Employment
MDA Care Centers: A National Network of Expert Care
Every year, MDA Care Centers and their expert clinicians serve more than 60,000 people living with neuromuscular diseases. Started in 1953 at a single clinic in New York, the Care…
Tags: Genetic Testing, Healthcare, MDA Care Centers, MDA Clinical and Scientific Conference, MDA Resource Center, MOVR, Resources
MDA Announces Advocacy Collaboration Grants Recipients
We know that no single organization can “do it all” when it comes to improving the lives of the neuromuscular community. In order to fulfill MDA’s mission of empowering the…
Tags: Advocacy Updates, Grants