Archives




Featured Article | Finding a Diagnosis, Science + Research

Q&A: Understanding Congenital Muscular Dystrophy

Congenital muscular dystrophy (CMD) expert Dean Burkin, PhD, answers questions about diagnosis, treatments, and the latest research.

Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Exon Skipping, Gene Therapy, Research, Research Advances, Spotlight


Featured Article | Lifestyle, Personal Stories

Muscular Dystrophy and Dating

These tips from community members and a mental health expert can help you navigate dating and sex with a neuromuscular disease.

Tags: Featured Content, Relationships, Young Adults


Featured Article | Inclusion, Lifestyle

MDA’s Art Collection Celebrates the Talents of Our Community

The MDA Art Collection showcases the talents of artists, young and old, living with muscular dystrophy and other neuromuscular diseases.

Tags: Community


Featured Article | Lifestyle, Personal Stories

Love and Marriage With a Disability

Kathy LeMieux lives with spinal muscular atrophy (SMA) and shares her journey finding love with a disability.

Tags: From Where I Sit, Relationships


Featured Article | Science + Research

MOVR Data Hub Aims to Improve Research and Care

Neuromuscular diseases are a diverse group of rare, mostly genetic conditions. This has made developing treatments challenging. However, investments in rare disease research by private and public agencies, including MDA,…

Tags: Clinical Trials, Drug Development, Featured Content, Innovation, MDA Care Centers, MOVR


Featured Article | Health, Lifestyle

The Truth About Nutrition and Neuromuscular Disease

What is a healthy diet? That’s not a simple question to answer because it depends on a lot of factors, including if you’re living with a neuromuscular disease. For example,…

Tags: Featured Content, Nutrition


Featured Article | Health, Independence

Tips and Tricks to Avoid Frustration with Getting and Repairing Medical Equipment

If you’ve tried to order a new power wheelchair or other mobility device, you may have experienced delays, product shortages, or other frustrations. “We’re still experiencing the very same issues…

Tags: Equipment and Assistive Devices, Featured Content, Insurance, MDA Resource Center


Featured Article | Advocacy, Inclusion

MDA Makes Strides in DEI

Disability is diversity MDA believes that true diversity cannot be achieved without the presence of those who live with disabilities. So, we are making progress in furthering diversity, equity, and…

Tags: Community, Employment


Featured Article | Finding a Diagnosis, Health

MDA Care Centers: A National Network of Expert Care

Every year, MDA Care Centers and their expert clinicians serve more than 60,000 people living with neuromuscular diseases. Started in 1953 at a single clinic in New York, the Care…

Tags: Genetic Testing, Healthcare, MDA Care Centers, MDA Clinical and Scientific Conference, MDA Resource Center, MOVR, Resources


Blog Post | Advocacy, Research

MDA Announces Advocacy Collaboration Grants Recipients

We know that no single organization can “do it all” when it comes to improving the lives of the neuromuscular community. In order to fulfill MDA’s mission of empowering the…

Tags: Advocacy Updates, Grants