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Congenital muscular dystrophy (CMD) refers to a group of genetic muscle diseases that become apparent within the first two years after birth. CMDs belong to the larger group of disorders…

After a three-year hiatus, advocates went back to Capitol Hill, but this time virtually. On September 28th and 29th,  families from across the country raised their voices and urged lawmakers…

Researchers at Horizon Therapeutics are seeking adults living with myasthenia gravis (MG) to participate in a phase 3 clinical trial to evaluate the safety and efficacy inebilizumab to treat MG. Inebilizumab…

For those living with a disability who are looking to join or remain in the workforce, the MDA Resource Center offers valuable tips for finding a job that plays to…

Looking Back to Move Ahead There is no better way to acknowledge The Year of Independence than taking a look back at our first in-person MDA Summer Camp sessions in…

Acosta CEO Brian Wynne talks with MDA about empowering employees with disabilities and raising money for MDA.

Having good hygiene with a disability, especially with a neuromuscular disease, can be challenging. Here are some suggestions from experts to make daily cleansing activities easier.

If you have a neuromuscular disease, is there anything more energy-draining than taking a shower or bath? It’s important, though, and not just because you don’t want to stink up the…

On Sept 29, the US Food and Drug Administration (FDA) granted approval of sodium phenylbutyrate/taurursodiol (Relyvrio) for the treatment of people with amyotrophic lateral sclerosis (ALS). To date, Relyvrio is…

Learn how the ADA protects rights for job applicants during the interviewing and hiring processes.