Archives
Get Prepared for Election Season
It might be an off-year election, but many states and localities are still holding important contests that can shape policy in your area. Therefore, it’s important that your voice is…
Tags: Advocacy Updates
Can Women and Girls Have Duchenne Muscular Dystrophy?
Awareness is spreading that women and girls can have Duchenne muscular dystrophy symptoms, but there’s more work to do.
The Journey to Self-Acceptance and Empowerment
Morgan Roth, Chief Marketing Officer at MDA When Morgan Roth went to see the new Barbie movie with her daughter, she was not expecting the film to have a significant,…
Tags: Community
MDA Continues to Lead the Way on Newborn Screening
It is well known that the earlier a disease is diagnosed and treated, the better the outcomes. Consequently, for neuromuscular diseases, where damage to the muscle, neurons, or sometimes both,…
Tags: Advocacy Updates, Caregiving, Community, Genetic Testing, Healthcare, Innovation, Newborn Screening, Parenting
MDA Ambassador Guest Blog: Marv and Me
Dave Leatherman and his Service dog Marv Dave Leatherman is a devoted husband and father from Cedar Rapids, IA, living with MYH7-Myopathy, diagnosed as an adult in Feb. of 2015. …
MDA Volunteer Love Stories
MDA Summer Camp provides one magical week each year where children living with neuromuscular disease can gain independence, try new activities, make friends, laugh, sing, smile, grow, and just have…
Letters From Leah: The Importance of Physical Activity
Hello. Leah Z. hitting a punching bag In today’s letter, I will be sharing the many reasons why physical activity is so important to me. I’m not sure you know…
Five Things You Should Know When Diagnosed with Neuromuscular Disease
Sometimes we think we have life figured out but then in the blink of an eye things can change. I lived 30 years of my life healthy and active. Sports,…
Deconstructing SMA Types and Treatments
Over the past decade, medical and scientific advances have increased overall health and life expectancy in people with spinal muscular atrophy (SMA). SMA causes progressive muscle weakness in affected individuals…
Tags: Clinical Trials, Drug Development, Healthcare, Research, Research Advances, Resources, Simply Stated
Accessible Playgrounds Give Everyone the Benefits of Play
Learn why accessible playgrounds and inclusive playgrounds are good for everyone, how to find them, and how to advocate for them in your community.
Tags: Community, Featured Content, Parenting, Staying Active