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Over the past few months, we’ve witnessed two significant milestones in the history of disability rights law. In May, we were invited to attend an announcement marking the finalization of…

Summertime often brings to mind sunshine, blue skies, cook-outs, yard games…and swimming! Having fun in the pool is a refreshing way to get exercise, socialize or relax, and cool off…

Researchers at Edgewise Therapeutics are seeking adults living with Becker muscular dystrophy to participate in a global Phase 2 pivotal study, GRAND CANYON, to evaluate the safety and efficacy of sevasemten…

Each year, Congress must create and pass legislation to fund the government’s operations and programs. This process is called the federal appropriations process and is a complex and often hard-to-predict…

Matt Curcio is a writer, speaker, and advocate. Matt lives in New Jersey with his wife, cats, and children. He lives with Collagen 6 Related Dystrophy. He specializes in traveling…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

In this Quest Podcast episode, we chat with the Executive Director of Open Style Lab (OSL), a non-profit organization that is on a mission to make style accessible for everyone,…

For many youths living with neuromuscular disease, MDA Summer Camp is the highlight of the summer. The free, week-long, sleep-away camp provides a place for campers to participate in accessible…

Chase Rankin was diagnosed with Friedreich’s ataxia in 7th grade. He is now majoring in Communication Studies at the University of North Carolina at Charlotte. Chase Rankin I’ll be completely…

MDA Advocacy has some exciting and impactful news to share out of Washington, DC! The recent passage of the FAA Reauthorization Act marks a significant milestone in making air travel…