Archives
Express Delivery
Viral vectors are an important area of research in the exciting field of gene-targeted therapies
Expanding Knowledge on GNE Myopathy
A Q&A with Tahseen Mozaffar, MD
Tags: Gene Therapy, Healthcare, Innovation, MDA Q and A, Research, Spotlight
Breaking Healthcare Barriers
MDA Care Centers strive to expand access to quality care
Tags: Featured Content, Healthcare, MDA Care Centers, MDA Resource Center, National Connections Program, Resources, Summer Camp
A Little Piece of the Future
Chelsea Moeller and her mother, Laura, both participated in the phase 2b Fulcrum ReDUX4 clinical trial last year. My experience participating in an FSHD clinical trial
The Search for ALS Treatments Continues
May is Amyotrophic Lateral Sclerosis (ALS) Awareness Month, and while this past year was different — given the global pandemic we all endured — the research and support for finding new treatments…
Tags: Clinical Trials, Research
Support for Your Journey
The MDA Resource Center connects people in the neuromuscular disease community with helpful resources and information
Tags: Web Exclusive
Parent Pressure
Hunt family Coping skills to help you handle stress when raising a child with neuromuscular disease
Help and Hope for Friedreich’s Ataxia
Bella, a 15-year-old in Fort Worth, Texas, loves jellyfish, horses, anime, Billie Eilish, reading sci-fi and fantasy, and making art. But living with Friedreich’s ataxia (FA) makes it hard for her…
Tags: Healthcare, Innovations, Research, Young Adults
Introducing New MDA National Ambassador Keisha Greaves and Checking in With Ambassador Ethan LyBrand
Beginning in the early 1950s, when public awareness and understanding of muscular dystrophy and related neuromuscular diseases were extremely limited, MDA began calling upon individuals living with these diseases to…
Tags: Ambassadors
Early Warning Signs Help Spot Neuromuscular Disease in Children
Josh Corbett[Image description: Josh, a light-skinned boy with short brown hair, stands in front of a brick wall wearing a black jacket, gray shirt, red shorts, and blue sneakers.] …
Tags: Healthcare, Parenting