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MDA Summer Camp Primes Kids for Independence
Children and youth with neuromuscular diseases build confidence and make friends at camp When Matthew and Jacob Rovenstine first went to MDA Summer Camp in Arizona in 2018, the brothers…
Profiles in STEM
Meet four individuals who prove that people with disabilities can thrive in challenging fields Although students with disabilities indicate interest and intent to pursue science, technology, engineering, and math (STEM)…
Dynamic Duo
Teen’s small business saves man’s best friend Some of the best ideas β and friendships β are born from moments of necessity. When 13-year-old Jackson Saville, who lives with spinal…
One Day at a Time
Being diagnosed with myotonic dystrophy changed my life, and I had to change with it On my 28th birthday, I recognized that something was wrong. I used to be able…
Service With a Smile and a Wag
Here’s what you need to know about what service dogs do and how to get one At Payton Rule’s high school in Missouri, the school year always ended with field…
Tags: Featured Content, Resources, Staying Active
MDA’s Care Center Network Expands
More than 150 hospitals and healthcare institutions provide specialized neuromuscular disease care Weβre welcoming 13 new hospitals and healthcare institutions to the MDA Care Center Network. These Care Centers…
Tags: Access MDA, MDA Care Centers
What You Should Know about the Smart Homes and Accessibility
Today, the smart home is a reality. Its story, meanwhile, is less about the latest products and capabilities and more about the ways users are accessing those products and channeling…
Tags: Featured Content, Innovation, Resources
Funding Accessible Vehicles
Passing on lessons I learned from buying an accessible van When my mom and I had to purchase a new accessible van about two years ago, we were not in…
Understanding Amyotrophic Lateral Sclerosis
A Q&A with Stanley Appel, MD Amyotrophic lateral sclerosis (ALS) is a degenerative motor neuron disease typically diagnosed in adults in middle age or later. About 18,000 people in…
Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Featured Content, Research, Spotlight
FDA Approves MTPAβs RADICAVA ORS for Treatment of ALS
FDA grants approval to an oral suspension of edaravone (RADICAVA ORS) for the treatment ofΒ amyotrophic lateral sclerosis (ALS).
Tags: Drug Approval, Healthcare, Research