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The Resource Center answers readers’ questions

Joanna Buoniconti has known she would be a writer since she was 8 years old. Writing helps me process emotions about living with a progressive disease

Todd Kelly’s strong support system includes his wife, Laurie. Acknowledging loss with laughter helps me maintain emotional balance

Queen, who lives with Bethlem myopathy When it comes to body positivity, perspective matters. These advocates are changing how the world sees them — and how they view themselves, too

Why are new therapies for neuromuscular diseases so expensive?

Jessica Stephan and her son, who is now 9 years old. I had to face my son’s diagnosis to take better care of my family and myself

MDA program brings STEM students and professionals together to discuss education and careers

Meet the winners of Quest’s Lasting Impression photo contest

For 18 years, Linda VanVliet spent most of her non-working time taking care of her daughter, Shelby, who was diagnosed with congenital muscular dystrophy at 3 years old. (That diagnosis…

When the COVID-19 pandemic began, much of the healthcare system shifted from primarily face-to-face visits to a wider acceptance of telehealth, or virtual appointments using computers, tablets, or smartphones. Health…