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What makes us uncomfortable? Maybe it is speaking up when we feel uncertain about something, or perhaps starting a new project, new job, or another major life change. For MDA’s…

Nutrition when taking corticosteroids like prednisone and deflazacort: foods to avoid and healthy diet plans.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Researchers at Janssen Research & Development, LLC are seeking pediatric patients from 2 to less than 18 years of age who have generalized myasthenia gravis (gMG) with symptoms despite receiving…

For job seekers with disabilities, the job search may include questions and challenges that others may not regularly come up against. In addition to wondering whether the roles you’re applying…

A family enjoys dessert at the 2022 FestAbility event. Photo credit: FestAbility. As the 2023 FestAbility event approaches, Sarah Schwegel is excited to once again gather, connect, and celebrate with…

The FDA approval of ELEVIDYS (delandistrogene moxeparvovec-rokl), the first-ever, gene therapy treatment for young boys living with Duchenne muscular dystrophy (DMD), brought unprecedented hope to families living with DMD. Designed…

Researchers at Immunovant are seeking adults who have mild to severe generalized myasthenia gravis (MG) to participate in a phase 3 clinical trial (FLEX) to evaluate the safety and efficacy of…

As many employers recognize the benefit of volunteerism, more and more companies are beginning to offer Volunteer Time Off (VTO) programs. VTO programs offer employees the opportunity take time off…

Periodic paralysis (PP) is a rare genetic condition that causes sudden, temporary episodes of muscle weakness, stiffness, or paralysis (inability to move). These episodes may affect the whole body or…