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What You Need to Know About Feeding Tubes and Nutrition
When a neuromuscular disease impairs chewing and swallowing, consider a feeding tube for good nutrition.
Tags: Featured Content, Healthcare, Nutrition
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Tags: Community, In Case You Missed It
Celebrating Independence with the Juracks
Families like the Juracks are at the heart of all that the Muscular Dystrophy Association (MDA) embodies, representing strength, resilience, and hope. Joshua, Jonah, Joel, Caroline, and Catherine Jurack The…
Hydration for Wheelchair Users
Avoiding the restroom? Healthy hydration tips for people who limit liquids due to wheelchairs or mobility issues.
Tags: Featured Content, Nutrition, Travel
Our Fight to Improve Air Travel Moves Forward
Big news in our effort to make air travel more accessible for people living with a disability. This June, the House Transportation and Infrastructure Committee unanimously passed its version of…
Pursuing Passion: From MDA Volunteer to MDA Employee
Scott Wiebe, MDA Director of Community Programs MDA’s Director of Community Programs Scott Wiebe, credits volunteering at MDA Summer Camp as one of the single most impactful experiences in his…
Quest Podcast: A Conversation with Steve Way
In this Quest Podcast episode, we chat with a renowned comedian, writer, and advocate who lives with physical disabilities. Steve Way, actor of the Hulu Original “Ramy”, joins us to…
Tags: Community, Mental Health, Relationships, Young Adults
FDA Approves Sarepta’s ELEVIDYS for Treatment of DMD
On June 22, the US Food and Drug Administration (FDA) granted accelerated approval of ELEVIDYS (delandistrogene moxeparvovec-rokl) for the treatment of ambulatory pediatric patients aged 4 through 5 years with Duchenne…
Tags: Drug Approval, Drug Development, Gene Therapy, Healthcare, Innovation, Research, Research Advances
Summertime Travel Go-Anywhere Products and Tips
Packing for vacation when you live with a disability requires a little extra planning and preparation. Travel often demands additional considerations to provide easy access to essentials and ensure that…
FDA Approves argenx’s Vyvgart Hytrulo for Treatment of gMG
On June 20, the US Food and Drug Administration (FDA) granted marketing approval of subcutaneous (SC) Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) for the treatment of generalized myasthenia gravis (gMG)…
Tags: Drug Approval