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Blog Post | Independence, Lifestyle, News

Introducing the NEW Quest Media Product Guide

I love to shop, y’all! Like any other seated fashionista worth her salt, I love to go on the hunt for the perfect item, a good bargain, items that exemplify…

Tags: Ambassadors, Resources


Blog Post | Health, Lifestyle

What You Need to Know About Feeding Tubes and Nutrition

When a neuromuscular disease impairs chewing and swallowing, consider a feeding tube for good nutrition.

Tags: Featured Content, Healthcare, Nutrition


Blog Post | Lifestyle, News

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Community, In Case You Missed It


Blog Post | Finding a Diagnosis, Independence, Lifestyle, Personal Stories

Celebrating Independence with the Juracks

Families like the Juracks are at the heart of all that the Muscular Dystrophy Association (MDA) embodies, representing strength, resilience, and hope. Joshua, Jonah, Joel, Caroline, and Catherine Jurack The…

Tags: College, Community, Relationships, Year of Independence, Young Adults


Blog Post | Health, Lifestyle

Hydration for Wheelchair Users

Avoiding the restroom? Healthy hydration tips for people who limit liquids due to wheelchairs or mobility issues.

Tags: Featured Content, Nutrition, Travel


Blog Post | Advocacy, Get Involved

Our Fight to Improve Air Travel Moves Forward

Big news in our effort to make air travel more accessible for people living with a disability. This June, the House Transportation and Infrastructure Committee unanimously passed its version of…

Tags: Accessible Air Travel, Advocacy Updates, Travel


Blog Post | Get Involved, Personal Stories

Pursuing Passion: From MDA Volunteer to MDA Employee

Scott Wiebe, MDA Director of Community Programs MDA’s Director of Community Programs Scott Wiebe, credits volunteering at MDA Summer Camp as one of the single most impactful experiences in his…

Tags: Community, Summer Camp, Volunteers, Year of the Volunteer


Blog Post | Advocacy, Finding a Diagnosis, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Quest Podcast: A Conversation with Steve Way

In this Quest Podcast episode, we chat with a renowned comedian, writer, and advocate who lives with physical disabilities. Steve Way, actor of the Hulu Original β€œRamy”, joins us to…

Tags: Community, Mental Health, Relationships, Young Adults


Blog Post | News, Science + Research

FDA Approves Sarepta’s ELEVIDYS for Treatment of DMD

On June 22, the US Food and Drug Administration (FDA) granted accelerated approval of ELEVIDYS (delandistrogene moxeparvovec-rokl) for the treatment of ambulatory pediatric patients aged 4 through 5 years withΒ Duchenne…

Tags: Drug Approval, Drug Development, Gene Therapy, Healthcare, Innovation, Research, Research Advances


Blog Post | Lifestyle

Summertime Travel Go-Anywhere Products and Tips

Packing for vacation when you live with a disability requires a little extra planning and preparation. Travel often demands additional considerations to provide easy access to essentials and ensure that…

Tags: Community, Travel