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Blog Post | Get Involved, Personal Stories

How MDA Prepares and Supports Summer Camp Volunteers

MDA Summer Camp is a magical place where truly anything is possible. Every summer, youth living with neuromuscular diseases have the opportunity to attend week-long sessions of overnight camp filled…

Tags: Summer Camp, Volunteers, Year of the Volunteer


Blog Post | Inclusion

MDA Expands Community Access to Resources with Language Translation Service

MDA’s mission is to empower the people we serve to live longer, more independent lives. One way that we do this is through support-centered check-in calls and touchpoints. In line…

Tags: Community, MDA Resource Center


Featured Article | Advocacy, Independence

The Good and Bad of Using Public Transit With a Disability

Public transportation can mean independence for people with disabilities if you know how to use it β€” and how to advocate for accessibility.

Tags: Resources, Thrive 365


Featured Article | Finding a Diagnosis, Science + Research

Q&A: Understanding Congenital Muscular Dystrophy

Congenital muscular dystrophy (CMD) expert Dean Burkin, PhD, answers questions about diagnosis, treatments, and the latest research.

Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Exon Skipping, Gene Therapy, Research, Research Advances, Spotlight


Featured Article | Lifestyle, Personal Stories

Muscular Dystrophy and Dating

These tips from community members and a mental health expert can help you navigate dating and sex with a neuromuscular disease.

Tags: Featured Content, Relationships, Young Adults


Featured Article | Inclusion, Lifestyle

MDA’s Art Collection Celebrates the Talents of Our Community

The MDA Art Collection showcases the talents of artists, young and old, living with muscular dystrophy and other neuromuscular diseases.

Tags: Community


Featured Article | Lifestyle, Personal Stories

Love and Marriage With a Disability

Kathy LeMieux lives with spinal muscular atrophy (SMA) and shares her journey finding love with a disability.

Tags: From Where I Sit, Relationships


Featured Article | Science + Research

MOVR Data Hub Aims to Improve Research and Care

Neuromuscular diseases are a diverse group of rare, mostly genetic conditions. This has made developing treatments challenging. However, investments in rare disease research by private and public agencies, including MDA,…

Tags: Clinical Trials, Drug Development, Featured Content, Innovation, MDA Care Centers, MOVR


Featured Article | Health, Lifestyle

The Truth About Nutrition and Neuromuscular Disease

What is a healthy diet? That’s not a simple question to answer because it depends on a lot of factors, including if you’re living with a neuromuscular disease. For example,…

Tags: Featured Content, Nutrition


Featured Article | Health, Independence

Tips and Tricks to Avoid Frustration with Getting and Repairing Medical Equipment

If you’ve tried to order a new power wheelchair or other mobility device, you may have experienced delays, product shortages, or other frustrations. β€œWe’re still experiencing the very same issues…

Tags: Equipment and Assistive Devices, Featured Content, Insurance, MDA Resource Center