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At MDA, we are proud and excited to announce the launch of a new service that will bring us closer to our community. Through our Resource Center and our team…

Leading the way as the #1 Voluntary Health Organization for over 70 years, at MDA volunteers are at the forefront of our legacy. Families are at the heart of our…

From passing key legislation to our Virtual Summit and Hill Day, 2022 has been an exceptional year for MDA advocates. You raised your voices and key decisionmakers heard all of…

Victor Wright Hope for a longer, more independent life is now becoming a reality for patients with muscular dystrophy and related diseases. Many stakeholders have played a vital role over…

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to present the final instalment in our 2022 blog series: “Quest…

On Nov. 15, the US Food and Drug Administration (FDA)’s Center for Biologics Evaluation and Research (CBER) Office of Tissues and Advanced Therapies (OTAT) hosted a patient-focused drug development (PFDD)…

Researchers at Brandeis University are seeking adults living with spinal muscular atrophy (SMA) to participate in a survey about their experiences with transition planning and transfers of care between pediatric and adult…

Researchers at Synchron are seeking individuals living with paralysis due to various causes, including muscular dystrophy, stroke, spinal cord injury, amyotrophic lateral sclerosis, and spinal muscular atrophy, to participate in a…

Researchers at Ohio State University are seeking individuals living with neuromuscular diseases, including muscular dystrophy, facioscapulohumeral muscular dystrophy (FSHD), and limb-girdle muscular dystrophy (LGMD), to participate in a phase 2 clinical…

Throughout 2022 MDA’s impact continued to grow as we advanced our mission to empower the people we serve to live longer, more independent lives while building on our legacy of…