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Featured Article | Science + Research

New Research Channels for Myotonia Congenita

A Q&A with Mark Rich, MD, PhD

Tags: Grants, Healthcare, Research, Research Advances, Resources, Spotlight


Featured Article | Personal Stories

Disability or Superpower

Mindy Henderson Our biggest challenges can be our greatest advantages

Tags: College, Education, Employment, From Where I Sit


Featured Article | Advocacy, Independence, Lifestyle, Personal Stories

Creativity and Adaptability

Members of the neuromuscular disease community draw on innovating skills to cope with the financial impacts of the pandemic

Tags: COVID-19, Education, Employment, Healthcare, Insurance, Relationships, Resources, Web Exclusive


Featured Article | Independence, Lifestyle

Affordable Accessibility at Home or On the Go

Wondering how you can manage home or vehicle modifications? Start with these steps

Tags: Featured Content, Finance, Resources, Travel


Blog Post | News

MDA Welcomes Dr. Don Wood as its New President and CEO

Steve Jobs said, β€œThe only way to do great work is to love what you do.” And MDA’s new president and CEO, Donald S. Wood, PhD, surely loves what he…

Tags: MDA Leadership, Research


Blog Post | Advocacy, Science + Research

How Expedited Drug Approval Impacts the Neuromuscular Disease Treatment Landscape

The urgency of the COVID-19 pandemic has transformed the drug-development landscape, driving rapid development, US review, and, in one case, new therapeutic approval. To bring critical drugs to market, the…

Tags: COVID-19, Drug Approval, Drug Development


Blog Post | Advocacy, News

MDA’s 2021 Advocacy Plan

2021 is a new year: The country has a new administration, and a new Congress has been sworn in. What isn’t new is MDA’s commitment to working tirelessly in Washington,…

Tags: Accessible Air Travel, Advocacy Updates, COVID-19, Clinical Trials, Drug Approval, Drug Development, Education, Employment, Newborn Screening, Travel


Blog Post | Inclusion, Independence, Lifestyle, Personal Stories

MDA Let’s Play Community Spotlight: NegaGrier

Jeff Shaw [Image description: A young man with long black hair pulled into a top bun wears round, black wire-rimmed glasses and a colorful black-and-red shirt reading “MDA Let’s Play…

Tags: College, Education, Employment, Fundraising, Let's Play, MDA Q and A, Relationships


Blog Post | Health, Science + Research

Research Study Alert: Survey on the Mental Health Experience of Parents and Guardians of Children With DMD

Researchers at the University of Pittsburgh invite parents and guardians of children with Duchenne muscular dystrophy (DMD) to participate in a study that investigatesΒ whether they utilize mental health resources and…

Tags: Caregiving, Mental Health, Parenting, Research


Blog Post | Science + Research

Research Study Alert: LGMD2I Natural History Study

Researchers at ML Bio Solutions areΒ seeking individuals living withΒ limb-girdle muscular dystrophy type 2I (LGMD2I, LGMD R9-FKRP-related) to participate in a 12-month natural history study. The objective of this observational study…

Tags: Clinical Trials, Research