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Who’s On Your MDA Care Center Team?: Dietitians and Nutritionists
At more than 150 MDA Care Centers nationwide, kids and adults living with neuromuscular disease (NMD) have access to multidisciplinary care teams made up of different specialists who can coordinate…
Tags: Healthcare, MDA Care Centers, Nutrition, Resources
Who’s On Your MDA Care Center Team?: Speech-Language Pathologists
At more than 150 MDA Care Centers nationwide, kids and adults living with neuromuscular disease (NMD) have access to multidisciplinary care teams made up of different specialists who can coordinate…
Tags: Healthcare, MDA Care Centers, Resources
MDA Partners on Pilot Program in North Carolina to Screen Babies for DMD
September is Newborn Screening Awareness Month, and today, Sept. 7, is World Duchenne Awareness Day, dedicated to spreading knowledge about Duchenne muscular dystrophy. As we honor both, we’re providing an…
Look & Feel Your Best During Stressful Times: Tips From a Disability Fashion Blogger
Lainie Ishbia, MSW, is a mom, wife, blogger, fashionista, and disability and empowerment speaker. She wears leg braces and struggles with buttons and everyday fine motor tasks because of a…
Tags: Independence, Innovation, Resources, Staying Active
Reporting Back on MDA’s First-Ever Virtual Hill Day
When the COVID-19 pandemic made meeting in person impossible, MDA’s Advocacy program needed to shift from in-person to virtual meetings with lawmakers. In early August, volunteers met with their lawmakers…
Who’s On Your MDA Care Center Team?: Young-Adult- and Adult-Focused Social Workers
At more than 150 MDA Care Centers nationwide, kids and adults living with neuromuscular disease (NMD) have access to multidisciplinary care teams made up of different specialists who can coordinate…
FDA Accepts Sarepta Therapeutics’ New Drug Application for DMD Treatment Casimersen
On Aug. 25, Sarepta Therapeutics announced that the US Food and Drug Administration (FDA) accepted the company’s New Drug Application (NDA) seeking accelerated approval for casimersen (SRP-4045), an investigational therapy…
Who’s On Your MDA Care Center Team?: Pediatric Social Workers
At more than 150 MDA Care Centers nationwide, kids and adults living with neuromuscular disease (NMD) have access to multidisciplinary care teams made up of different specialists who can coordinate…
Smashing Stereotypes
Jessica Hetzel faced a long but rewarding journey to join Greek life on her college campus. Making sorority life more inclusive, one chapter at a time
MDA’s 2020 Advocacy Agenda Update
Even during the COVID-19 pandemic, MDA continues to make sure lawmakers hear the voice of the neuromuscular disease community