Archives
Outdoor Recreation Opportunities for Everyone
A growing number of parks and recreation areas accommodate people with disabilities who are looking for adventure with accessibility.
Tags: Community, Resources, Staying Active, Travel
Brain-Computer Interface Technology Could Improve Life for Millions
It’s been half a century since University of California, Los Angeles, computer science professor Jacques Vidal coined the term “brain-computer interface” (BCI) and produced the first peer-reviewed papers on the…
MDA Recognizes the Esteemed Members of Our Volunteer Advisory Committee
Our MDA Volunteer Committee shares what volunteering means to them, as we thank them on National Volunteer Recognition Day.
Tags: Community, Fundraising, Volunteers
Simply Stated: What is Myotonic Dystrophy?
Similar to other forms of muscular dystrophy, Myotonic Dystrophy (DM) is characterized by progressive muscle loss and weakness.
How to Set Goals for Personal Growth and Wellness
Specific and trackable goals give you a roadmap to your destination, and working toward a goal can help you grow and improve wellbeing.
Tags: Mental Health, Resources
2022 Clinical & Scientific Conference March 15 Highlights
The three major themes of the second day of MDA’s Clinical & Scientific Conference sessions were (1) therapeutic strategies to treat NMDs, (2) clinical trial design and implementation, and (3)…
Simply Stated: What is Duchenne Muscular Dystrophy?
Research advances and the promise of better therapeutics on the horizon offer hope for people living with Duchenne muscular dystrophy.
Tags: Clinical Trials, Community Education, Drug Approval, Drug Development, Exon Skipping, Gene Therapy, Genetic Testing, Healthcare, Innovations, Research, Simply Stated
Positive Relationships
How adults with neuromuscular disease can form and nurture healthy romantic relationships Trust. Honesty. Mutual respect. Affection. The key elements of a healthy romantic relationship are the same for…
Quest for Success: Alexa Dectis
As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to kick off our 2022 blog series: “Quest for Success”. Success…
Self-Care for the New Year
When psychotherapist and disability advocate, Lauren Presutti, needs to recenter with a little self-care, she focuses on taking the time to tune into her feelings. Lauren, who lives with congenital…
Tags: Caregiving, Mental Health