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Featured Article | Personal Stories

What Happened to You

A young man with SMA answers this question by becoming a student leader

Tags: College, From Where I Sit, Young Adults


Blog Post | Science + Research

Risky Business: Nongenetic Factors May Increase Odds of Developing ALS

Everyone is born, and everyone dies. What happens in between — colds and flu, cardiac problems, cancer, amyotrophic lateral sclerosis (ALS) — is anyone’s guess. And people do guess. It’s common — indeed, almost…

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Blog Post | Advocacy, Get Involved, Health, News, Science + Research

National ALS Registry Now Open

After two years of laying the groundwork, the Agency for Toxic Substances and Disease Registry (ATSDR) has opened its National ALS Registry to collect information from people living with ALS. Scientists…

Tags: Clinical Trials, Education, Healthcare, Innovation, Research, Research Advances


Blog Post | Health, Science + Research

Water-Contamination Link to ALS Tenuous Without More Data

Recently, media outlets reported a possible link between developing ALS and living near Lake Mascoma in Western New Hampshire. The Union Leader in New Hampshire and other news outlets indicated that the…

Tags: Healthcare, Research


Blog Post | Health, Personal Stories, Science + Research

Gulf War Vets More Likely to Get ALS

A government-supported research team announced in the Sept. 23 issue of the journal Neurology that having served in southwest Asia during the Gulf War significantly increases the risk of later…

Tags: Healthcare, Research