Archives
Research Study Alert: Survey on the Mental Health Experience of Parents and Guardians of Children With DMD
Researchers at the University of Pittsburgh invite parents and guardians of children with Duchenne muscular dystrophy (DMD) to participate in a study that investigates whether they utilize mental health resources and…
Tags: Caregiving, Mental Health, Parenting, Research
Meditation and Neuromuscular Disease
Living with neuromuscular disease (NMD) involves specific challenges — some physical, some strategic, some structural — that can create stress and contribute to changes in both physical and mental health.…
Tags: MDA Q and A, Mental Health, Resources
MDA Advocacy’s 2020 Year in Review
There’s no doubt 2020 has been a challenging year, but the commitment and passion of our MDA advocates have truly been a bright spot. As we close out the year,…
Clinical Trials During COVID 19
What you need to know about research during the pandemic
Tags: COVID-19, Clinical Trials, Resources, Web Exclusive
What You Need to Know About Open Enrollment in 2020
Open enrollment — the period each year when people are eligible to purchase new insurance or make changes to their existing insurance plans — is upon us. Buying health insurance…
Tags: Healthcare, Insurance, Resources
Know Your Voting Rights on Election Day 2020
Elections are fundamental to a thriving democracy, and it’s vital everyone can exercise their right to vote, including those living with a disability. We know you may have questions about…
Tags: Resources
Who’s On Your MDA Care Center Team?: Dietitians and Nutritionists
At more than 150 MDA Care Centers nationwide, kids and adults living with neuromuscular disease (NMD) have access to multidisciplinary care teams made up of different specialists who can coordinate…
Tags: Healthcare, MDA Care Centers, Nutrition, Resources
Who’s On Your MDA Care Center Team?: Young-Adult- and Adult-Focused Social Workers
At more than 150 MDA Care Centers nationwide, kids and adults living with neuromuscular disease (NMD) have access to multidisciplinary care teams made up of different specialists who can coordinate…
Hacking COVID: MDA Staff Edition
In April, MDA fielded a survey to ask its community how COVID-19 was impacting their lives. We heard your responses — anxiety, questions, hope — and wanted to know more.…
Tags: COVID-19, Mental Health, Staying Active
Hacking COVID: Voices from the Community, Part 3
In April, MDA fielded a survey to ask its community how COVID-19 was impacting their lives. We heard your responses — anxiety, questions, hope — and wanted to know more.…
Tags: COVID-19, Mental Health