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How adults with neuromuscular disease can form and nurture healthy romantic relationships   Trust. Honesty. Mutual respect. Affection. The key elements of a healthy romantic relationship are the same for…

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to kick off our 2022 blog series: “Quest for Success”. Success…

When psychotherapist and disability advocate, Lauren Presutti, needs to recenter with a little self-care, she focuses on taking the time to tune into her feelings.  Lauren, who lives with congenital…

Here at MDA, we are working to ensure all contact information is up-to-date for those who are registered in order to serve you as well as we possibly can. If…

Michio Hirano, MD (fourth from right), and his research team gather with the Coiculescu family, whose sons received an experimental treatment for TK2 deficient myopathy through a compassionate use study.…

Erasing stigma and finding support for mental health

The Resource Center answers readers’ questions

Queen, who lives with Bethlem myopathy When it comes to body positivity, perspective matters. These advocates are changing how the world sees them — and how they view themselves, too

For 18 years, Linda VanVliet spent most of her non-working time taking care of her daughter, Shelby, who was diagnosed with congenital muscular dystrophy at 3 years old. (That diagnosis…

When the COVID-19 pandemic began, much of the healthcare system shifted from primarily face-to-face visits to a wider acceptance of telehealth, or virtual appointments using computers, tablets, or smartphones. Health…