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Blog Post | Science + Research

Research Study Alert: Survey for People with Muscular Dystrophy and Their Caregivers about Quality of Life

Researchers are seeking people living with muscular dystrophy (MD) and their caregivers for a survey about their quality of life.

Tags: Caregiving, Research Study Alert


Blog Post | Science + Research

Clinical Trial Alert: Phase 2 Study of ALXN2050 in Adults Living with gMG

Researchers are seeking adults living with generalized myasthenia gravis (gMG) for clinical trial to evaluate investigational drug ALXN2050.

Tags: Clinical Trial Alert, Drug Development, Research


Blog Post | Science + Research

Clinical Trial Alert: Phase 2 Study of Ravulizumab (Ultomiris) in Adults Living with Dermatomyositis

Researchers are seeking adults living with dermatomyositis to participate in a clinical trial for the investigational drug ravulizumab.

Tags: Clinical Trial Alert, Drug Development, Research


Blog Post | Get Involved, Personal Stories

MDA Welcomes National Volunteer Month with Gratitude

MDA celebrates National Volunteer Month by thanking our volunteers who work tirelessly to support MDA’s mission and the families we serve.

Tags: Community, Fill the Boot, Fundraising, Muscle Walk, Summer Camp, Team Momentum, Volunteers


Blog Post | Personal Stories

Quest for Success: Tana Zwart

Tana Zwart, a freelance media manager, has made an art of adapting to a changing job market while pursuing and achieving her goals.

Tags: College, Community, Education, Employment, Quest for Success, Year of Independence


Blog Post | Science + Research

Simply Stated: What is Myotonic Dystrophy?

Similar to other forms of muscular dystrophy, Myotonic Dystrophy (DM) is characterized by progressive muscle loss and weakness.

Tags: Clinical Trials, Healthcare, Innovation, Research, Resources, Simply Stated


Blog Post | News

Living Through War in Ukraine with a Neuromuscular Disease

The war in Ukraine destroys hospitals and care centers, threatening the lives of those with neuromuscular disease.

Tags: Caregiving, Community, Healthcare, Parenting, Resources


Blog Post | Lifestyle

How to Set Goals for Personal Growth and Wellness

Specific and trackable goals give you a roadmap to your destination, and working toward a goal can help you grow and improve wellbeing.

Tags: Mental Health, Resources


Blog Post | Get Involved, Personal Stories

MDA Shamrock’s 40th Birthday T-shirt: The Mind Behind the Design

To commemorate the 40th Birthday of MDA Shamrocks with a special edition T-shirt, the MDA enlisted the talent and expertise of freelance graphic designer, Dustin Clark. Dustin, a 28-year-old designer and…

Tags: Education, Employment, Fundraising, Shamrocks, Year of Independence


Blog Post | Science + Research

2022 Clinical & Scientific Conference: March 16 Highlights

On the last day of 2022 MDA’s Clinical & Scientific Conference, the theme is clinical trials in neuromuscular disease (NMD).

Tags: Clinical Trials, Drug Development, Exon Skipping, Healthcare, Innovation, MDA Clinical and Scientific Conference