Archives
Research Study Alert: Survey for People with Muscular Dystrophy and Their Caregivers about Quality of Life
Researchers are seeking people living with muscular dystrophy (MD) and their caregivers for a survey about their quality of life.
Tags: Caregiving, Research Study Alert
Clinical Trial Alert: Phase 2 Study of ALXN2050 in Adults Living with gMG
Researchers are seeking adults living with generalized myasthenia gravis (gMG) for clinical trial to evaluate investigational drug ALXN2050.
Clinical Trial Alert: Phase 2 Study of Ravulizumab (Ultomiris) in Adults Living with Dermatomyositis
Researchers are seeking adults living with dermatomyositis to participate in a clinical trial for the investigational drug ravulizumab.
MDA Welcomes National Volunteer Month with Gratitude
MDA celebrates National Volunteer Month by thanking our volunteers who work tirelessly to support MDA’s mission and the families we serve.
Quest for Success: Tana Zwart
Tana Zwart, a freelance media manager, has made an art of adapting to a changing job market while pursuing and achieving her goals.
Simply Stated: What is Myotonic Dystrophy?
Similar to other forms of muscular dystrophy, Myotonic Dystrophy (DM) is characterized by progressive muscle loss and weakness.
Living Through War in Ukraine with a Neuromuscular Disease
The war in Ukraine destroys hospitals and care centers, threatening the lives of those with neuromuscular disease.
Tags: Caregiving, Community, Healthcare, Parenting, Resources
How to Set Goals for Personal Growth and Wellness
Specific and trackable goals give you a roadmap to your destination, and working toward a goal can help you grow and improve wellbeing.
Tags: Mental Health, Resources
MDA Shamrock’s 40th Birthday T-shirt: The Mind Behind the Design
To commemorate the 40th Birthday of MDA Shamrocks with a special edition T-shirt, the MDA enlisted the talent and expertise of freelance graphic designer, Dustin Clark. Dustin, a 28-year-old designer and…
2022 Clinical & Scientific Conference: March 16 Highlights
On the last day of 2022 MDA’s Clinical & Scientific Conference, the theme is clinical trials in neuromuscular disease (NMD).
Tags: Clinical Trials, Drug Development, Exon Skipping, Healthcare, Innovation, MDA Clinical and Scientific Conference