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Blog Post | Advocacy, Get Involved

Support ALS Patients: Tell Congress to Pass the ALS Disability Insurance Act Today

Amyotrophic lateral sclerosis (ALS) is a neuromuscular degenerative disease that causes rapid muscular atrophy. It progresses quickly, and patients need access to all available support as soon as possible. Currently,…

Tags: Advocacy Updates, Insurance, MDA Care Centers


Blog Post | Science + Research

Do You Know ALS? Meet Dr. Glass.

Dr. Jonathan Glass is the director of the Emory ALS Center, co-chair of the Northeast ALS Consortium, and professor of Neurology and Pathology at Emory University in Atlanta. Dr. Glass’…

Tags: Gene Therapy, MDA Care Centers, Research


Blog Post | Personal Stories, Science + Research

Do You Know ALS? Meet Jim.

In 2015, Karen Condron was honored with MDA’s prestigious Wings Over Wall Street Spirit Award in recognition of her passion for life — while fighting amyotrophic lateral sclerosis (ALS). It…

Tags: Fundraising, Relationships


Blog Post | Personal Stories, Science + Research

Do You Know ALS? Diagnosing the Disease is an Odyssey.

While most visits to the doctor lead to a quick diagnosis, the same is not so for amyotrophic lateral sclerosis (ALS). On average, getting an ALS diagnosis takes 12 months…

Tags: Clinical Trials, MDA Care Centers


Blog Post | Personal Stories, Science + Research

Do You Know ALS? Meet Anthony, Alicia, and Erin.

Team Momentum is a team of runners who dedicate their miles to help our community raise critical dollars that help MDA fund research breakthroughs and provide families living with muscle…

Tags: Community, Fundraising, Team Momentum


Blog Post | Personal Stories, Science + Research

Do You Know ALS? Meet Pat.

Pat Quinn, co-founder of the ALS Association’s Ice Bucket Challenge, has been advocating for ALS awareness, treatments and a cure since his diagnosis with amyotrophic lateral sclerosis (ALS) in 2013.…

Tags: Community, Relationships, Research


Blog Post | Personal Stories, Science + Research

Do You Know ALS? Meet John.

John Schwall, chief operating officer and co-founder of IEX, shares a personal connection in the fight against amyotrophic lateral sclerosis (ALS) as his mother suffered a six-year battle with the…

Tags: Community, Fundraising


Blog Post | Personal Stories, Science + Research

Do You Know ALS? Meet Warren.

From the time of his wife’s amyotrophic lateral sclerosis (ALS) diagnosis in 2000, Warren Schiffer and his wife, Toni Diamond, dedicated themselves to raising funds to find a cure. The…

Tags: Community, Fundraising


Blog Post | News, Science + Research

Do You Know ALS? Read About the Latest Research.

It’s a hard fact that only three medications have been approved to treat amyotrophic lateral sclerosis (ALS) in nearly 25 years. Fortunately, research in ALS has exploded in the past…

Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Gene Therapy, Grants, Research, Research Advances


Blog Post | Personal Stories, Science + Research

Do You Know ALS? Meet Peter.

In 2015, Peter Warlick was diagnosed with amyotrophic lateral sclerosis (ALS). Despite the progression of the disease, Peter continues to be a dedicated father, husband, and American Airlines employee. Peter…

Tags: Community, Fundraising, MDA Care Centers