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Many Americans, including those living with a neuromuscular disease, rely on Medicaid to access vital medical care, especially during the COVID-19 pandemic. However, as the federal Public Health Emergency (PHE),…

Researchers at Alexion AZ Rare Disease are seeking adults living with generalized myasthenia gravis (gMG) to participate in a phase 2 clinical trial (ExpanD Study) to evaluate the safety and efficacy…

February 28 marked Rare Disease Day — an annual event calling attention to the 300 million people worldwide who live with one or more of the 7,000 illnesses classified as…

The 2023 MDA Clinical & Scientific Conference is just around the corner. With 32 sessions, 184 speakers, 61 exhibitors and patient advocacy organizations and 14 Industry Forums, this year’s conference…

On Feb. 28, the US Food and Drug Administration (FDA) granted approval to omaveloxolone (SKYCLARYS™) for the treatment of Friedreich’s ataxia (FA) in adults and adolescents aged 16 years and…

By thinking about personal safety and learning about self-defense with a disability, you can feel more protected and confident outside your home.

Facioscapulohumeral muscular dystrophy (FSHD) is a rare genetic disorder that affects the muscles of the face (facio), shoulders (scapulo), and upper arms (humeral). It is one of the most common…

New therapies and research advances for some neuromuscular diseases are paving the way for developing new treatments for other rare diseases.

Leah is an MDA National Ambassador who lives with a rare form of neuromuscular disease. Dear Parents, Hi,  my name is Leah and I am 15 years old. I live…

For our February Valentine’s Day Quest Podcast, we catch up with Bill Crossland, a writer, director, producer, and actor who lives with muscular dystrophy. Bill shares his insights and experiences…