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As the autumn leaves start to fall, the holiday season is upon us. And between the hustle and bustle of decorating, shopping, food preparation, and social gatherings, the holidays can…

How to search the internet to find reliable information about neuromuscular diseases and the latest research.

Knowing how to effectively communicate your wishes and needs to doctors in offices and hospitals results in better healthcare.

With natural disasters on the rise, here’s how people with disabilities can prepare and increase awareness of their needs in their communities.

MDA On the Road launches a journey to advocate for the neuromuscular disease community with appearances at high-impact conferences.

When you join MDA, you become a member of an active, broader, and supported neuromuscular community. One way that MDA stays connected with our families through every step of their…

Protective and advocacy organizations offer legal support people for with disabilities to exercise their rights.

Researchers at the University of Pittsburgh are seeking adults living with Becker muscular dystrophy (BMD) to participate in a phase 2 clinical trial to evaluate the safety and efficacy of vamorolone…

Researchers at Ohio State University are seeking adults living with spinal muscular atrophy (SMA) to participate in a 12-month natural history study. The objective of this observational study is to look at…

Researchers at Virginia Commonwealth University are seeking boys living with Duchenne muscular dystrophy (DMD), as well their biological mothers who may or may not carry DMD-causing genetic variants, to participate in a…