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Blog Post | Advocacy

MDA Advocacy’s 2020 Year in Review

There’s no doubt 2020 has been a challenging year, but the commitment and passion of our MDA advocates have truly been a bright spot. As we close out the year,…

Tags: Accessible Air Travel, Advocacy Updates, COVID-19, Newborn Screening, Travell


Featured Article | Health

The Way of the Future

MDA Care Centers innovate to bring healthcare into the home

Tags: COVID-19, Featured Content, Healthcare, Innovations, MDA Care Centers, Technology


Featured Article | Science + Research

The Search for Inclusion Body Myositis Treatment

A Q&A with Anthony A. Amato, MD

Tags: Clinical Trials, Healthcare, Research, Research Advances, Resources, Spotlight


Featured Article | Inclusion, Independence, Lifestyle

From a Distance

Students and educators share their experiences with online learning

Tags: COVID-19, Education, Featured Content, Parenting, Resources, Technology


Featured Article | Science + Research

Clinical Trials During COVID 19

What you need to know about research during the pandemic

Tags: COVID-19, Clinical Trials, Resources, Web Exclusive


Featured Article | Independence, Personal Stories

Business Unusual

Can a global pandemic be a blessing in disguise? For this fashion entrepreneur, the answer is yes

Tags: COVID-19, Employment, From Where I Sit


Featured Article | Personal Stories

2020 Reader Photo Contest Winners

Meet the winners of Quest’s Lasting Impression Photo Contest

Tags: College, Education, Lasting Impression, Relationships, Staying Active


Blog Post | Advocacy, Health

What You Need to Know About Open Enrollment in 2020

Open enrollment β€” the period each year when people are eligible to purchase new insurance or make changes to their existing insurance plans β€” is upon us. Buying health insurance…

Tags: Healthcare, Insurance, Resources


Blog Post | Science + Research

Once a Wild Idea, Successful First-Generation Exon-Skipping Therapies Pave the Way for Personalized Treatments

In 1996, MDA provided a small starter grant to Dr. Steve Wilton, a primary investigator at the University of Western Australia in Perth, for research into what scientists then thought…

Tags: Clinical Trials, Drug Approval, Drug Development, Exon Skipping, Innovation, Research, Research Advances


Blog Post | Independence, Lifestyle

10 Tips for Finding Personal Care Attendants

Personal care attendants (PCAs) play a crucial role in helping people in the neuromuscular disease community day to day. Whether they’re assisting with activities of daily living or managing medical…

Tags: Caregiving, Healthcare, Insurance, Personal Care Attendants, Resources