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Do You Know ALS? Meet Pat.
Pat Quinn, co-founder of the ALS Association’s Ice Bucket Challenge, has been advocating for ALS awareness, treatments and a cure since his diagnosis with amyotrophic lateral sclerosis (ALS) in 2013.…
Tags: Community, Relationships, Research
Do You Know ALS? Meet John.
John Schwall, chief operating officer and co-founder of IEX, shares a personal connection in the fight against amyotrophic lateral sclerosis (ALS) as his mother suffered a six-year battle with the…
Tags: Community, Fundraising
Do You Know ALS? Meet Warren.
From the time of his wife’s amyotrophic lateral sclerosis (ALS) diagnosis in 2000, Warren Schiffer and his wife, Toni Diamond, dedicated themselves to raising funds to find a cure. The…
Tags: Community, Fundraising
Do You Know ALS? Read About the Latest Research.
It’s a hard fact that only three medications have been approved to treat amyotrophic lateral sclerosis (ALS) in nearly 25 years. Fortunately, research in ALS has exploded in the past…
Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Gene Therapy, Grants, Research, Research Advances
Do You Know ALS? Meet Peter.
In 2015, Peter Warlick was diagnosed with amyotrophic lateral sclerosis (ALS). Despite the progression of the disease, Peter continues to be a dedicated father, husband, and American Airlines employee. Peter…
Tags: Community, Fundraising, MDA Care Centers
Do You Know ALS? Meet Sandy.
In 2018, Sandy Morris, wife and mother of three, was diagnosed with amyotrophic lateral sclerosis (ALS) at the age of 51. Sandy is a passionate advocate for ALS research who…
Tags: Clinical Trials, Community
FDA Approves Jacobus Pharmaceuticals’ Ruzurgi for Treatment of Children with Lambert-Eaton Myasthenic Syndrome
On May 6, the U.S. Food and Drug Administration (FDA) announced the approval of Ruzurgi (amifampridine) for the treatment of children with Lambert-Eaton myasthenic syndrome (LEMS) who are between 6 and…
Tags: Clinical Trials, Drug Approval, Research
MDA Wins 2019 Sonia Skarlatos Public Service Award
We are pleased to announce that on May 1, 2019, the American Society for Gene and Cell Therapy awarded MDA the Sonia Skarlatos Public Service Award for 2019. Named for…
Tags: Gene Therapy, Grants
Do You Know ALS? Meet Brant.
For Dane Boersma, the best things in life were simple: a good cup of coffee, and some good people to drink it with. Dane Boersma, left, with his son, Brant,…
Tags: Community, Fundraising
MDA National Ambassador Justin Moy Reflects on Our 2019 Clinical & Scientific Conference
If I could describe the 2019 MDA Clinical & Scientific Conference in Orlando, Fla., with one word, it would be “massive” — but fortunately, I have an entire blog post…