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Blog Post | Advocacy, Health

What You Need to Know About Open Enrollment in 2020

Open enrollment — the period each year when people are eligible to purchase new insurance or make changes to their existing insurance plans — is upon us. Buying health insurance…

Tags: Healthcare, Insurance, Resources


Blog Post | Advocacy, Inclusion, Independence

Know Your Voting Rights on Election Day 2020

Elections are fundamental to a thriving democracy, and it’s vital everyone can exercise their right to vote, including those living with a disability. We know you may have questions about…

Tags: Resources


Blog Post | Health, Lifestyle

Who’s On Your MDA Care Center Team?: Dietitians and Nutritionists

At more than 150 MDA Care Centers nationwide, kids and adults living with neuromuscular disease (NMD) have access to multidisciplinary care teams made up of different specialists who can coordinate…

Tags: Healthcare, MDA Care Centers, Nutrition, Resources


Blog Post | Health, Independence

Who’s On Your MDA Care Center Team?: Young-Adult- and Adult-Focused Social Workers

At more than 150 MDA Care Centers nationwide, kids and adults living with neuromuscular disease (NMD) have access to multidisciplinary care teams made up of different specialists who can coordinate…

Tags: Healthcare, MDA Care Centers, Mental Health, Resources, Staying Active


Blog Post | Lifestyle, Personal Stories

Hacking COVID: MDA Staff Edition

In April, MDA fielded a survey to ask its community how COVID-19 was impacting their lives. We heard your responses — anxiety, questions, hope — and wanted to know more.…

Tags: COVID-19, Mental Health, Staying Active


Blog Post | Independence, Lifestyle

Hacking COVID: Voices from the Community, Part 3

In April, MDA fielded a survey to ask its community how COVID-19 was impacting their lives. We heard your responses — anxiety, questions, hope — and wanted to know more.…

Tags: COVID-19, Mental Health


Featured Article | Health, Lifestyle

Coping Through a Crisis

Experts weigh in on the keys to resilience in a stressful world

Tags: Featured Content, Mental Health, Relationships


Blog Post | News, Science + Research

Zogenix Announces Positive Results from Pivotal Study of Investigational Treatment MT1621 for TK2 Deficiency

At the 24th Annual Congress of the World Muscle Society (WMS) held in October 2019 in Copenhagen, Denmark, Zogenix presented positive results from its pivotal phase 2 retrospective clinical trial (RETRO)…

Tags: Clinical Trials, Grants, Research, Research Advances


Blog Post | News, Science + Research

World Muscle Society Roundup: Clinical Trial Results of Treatments in Development for DMD, XLMTM, SMA, and Pompe Disease

Several biotech and pharma companies presented interim results at the 24th Annual Congress of the World Muscle Society (WMS) held earlier this month in Copenhagen, Denmark. This roundup covers a…

Tags: Clinical Trials, Research


Blog Post | News, Science + Research

MDA Grants Charles Thornton More Than $1 Million in New Funding to Continue Supporting the Myotonic Dystrophy Clinical Research Network

Charles Thornton, MD, professor of Neurology at the University of Rochester, was awarded an MDA clinical research network grant (CRNG) totaling $1,118,673 over three years to continue to lead the…

Tags: Clinical Trials, Grants, Research