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Blog Post | Advocacy, Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Accessible Air Travel, Ambassadors, Community, Healthcare, Resources


Blog Post | Personal Stories, Science + Research

International Day of Women and Girls in Science: MDA’s Spotlight on Dr. Kathryn Moss

In recognition of International Day of Women and Girls in Science, the Muscular Dystrophy Association (MDA) is honored and excited to highlight the career and accomplishments of Dr. Kathryn Moss,…

Tags: College, Community, Innovation, Research, Research Advances


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: The Intersectionality of Identities as a Black Woman Living with a Disability

Gabrielle Runyon is a 22-year-old Kentucky native who currently goes to the illustrious Tennessee State University. She is obtaining her master’s in counseling with a concentration in clinical mental health.…

Tags: Ambassador Guest Blog, Ambassadors, College, College Experience, Community, Education, Relationships, Young Adults


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

Quest Podcast: Living with Intention and Creating a More Beautiful Life

In this Quest Podcast episode, we chat with a certified Life Coach who lives with spinal muscular atrophy. Amber Bosselman has devoted her career to providing living skills for individuals…

Tags: Caregiving, Community, Mental Health, Relationships


Blog Post | Independence, Lifestyle, Personal Stories

The Complex Beauty of the Unexpected

Abby Dreyer is an honors student at Eastern Connecticut State University who lives with spinal muscular atrophy (SMA). She enjoys learning other languages, trying new things, writing, watching movies, and staying…

Tags: Ambassadors, Caregiving, College, College Experience, Community, Education, Mental Health, Relationships, Year of Independence, Young Adults


Blog Post | Health, Science + Research, Tools& Resources

Simply Stated: RNA-Based Therapies in Development for Myotonic Dystrophy

Myotonic dystrophy (DM) is a type of muscular dystrophy that affects about 1 in 8,000 people worldwide. DM is characterized by progressive muscle loss and weakness, but can also affect…

Tags: Clinical Trials, Drug Development, Education, Gene Therapy, Healthcare, Innovation, Research Advances, Resources, Simply Stated


Blog Post | Advocacy, Get Involved, News, Tools& Resources

Championing for Change: MDA’s 2025 Advocacy Agenda

With a new Congress and Administration in office, it’s safe to say that 2025 is going be a year full of change. But what remains consistent is MDA’s commitment to…

Tags: Accessible Air Travel, Advocacy Updates, Community, Healthcare, Resources


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, News, Personal Stories

Getting to Know Your 2025 MDA National Ambassadors

MDA’s Ambassadors are pivotal to our mission: empowering people living with neuromuscular disease to live longer, more independent lives. We strive for our mission through care, research, and advocacy. Our…

Tags: Ambassadors, Community, Ira, Lily, MDA Ambassador Program, MDA Ambassadors, National Ambassadors, Relationships, Young Adults


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

Breaking Barriers in Higher Education: My Journey as a Student with Muscular Dystrophy

Serena Desiderio, from Gilbert, Arizona, is a senior at the University of Arizona studying Physiology and Medical Sciences with an emphasis in Exercise Physiology and a minor in Psychology. Diagnosed…

Tags: College, College Experience, Community, Education, Mental Health, Relationships, Year of Independence, Young Adults


Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Music is the Best Medicine

Richard Fry is an aspiring writer and poet. He is first and foremost a musician. Through writing and folk music, Richard strives to inspire admiration for the innate beauty of…

Tags: Ambassador Guest Blog, Ambassadors, Community, Mental Health, Resources, Young Adults