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A writer with Charcot-Marie-Tooth disease (CMT) shares what she learned from her affordable accessible bathroom remodel.

The next generation of exon skipping-therapies for Duchenne muscular dystrophy promises to be more effective at restoring muscle-building dystrophin protein.

Anthony DeVergillo Anthony DeVergillo is passionate about video games – and inclusion. The 31-year-old from Bedminster, NJ, brought that passion to the creation of Overjoyed About Inclusion, a platform that…

At the Muscular Dystrophy Association (MDA), we’re always striving to break new ground in the fight against neuromuscular diseases. Today, we’re thrilled to share an exciting new initiative that brings…

Thornton Blease wants to live in a world where horses and dragons roam free, and everyone can reach their fullest potential. He lives with myotonic muscular dystrophy and resides in Stewartsville,…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Movies have always been an escape, and a world of fantasy moviegoers can get lost in. However, movies also have an irrefutable impact on our culture. The music, the clothes,…

Conner Curran Conner Curran made history when he became the first child to receive gene therapy treatment for Duchenne muscular dystrophy (DMD) in a 2018 Pfizer clinical trial. Clinical trials…

Researchers at Interface Analysis Associates (IIA) (on behalf of Biohaven) are seeking individuals living with spinal muscular atrophy (SMA) to participate in a study to assess the experience of using an…

The muscular dystrophies are a group of diseases that cause progressive muscle weakness (myopathy) and loss of muscle mass (atrophy). These conditions can lead to varying levels of disability in…