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The MDA Resource Center connects people in the neuromuscular disease community with helpful resources and information

Hunt family Coping skills to help you handle stress when raising a child with neuromuscular disease

Bella, a 15-year-old in Fort Worth, Texas, loves jellyfish, horses, anime, Billie Eilish, reading sci-fi and fantasy, and making art. But living with Friedreich’s ataxia (FA) makes it hard for her…

Beginning in the early 1950s, when public awareness and understanding of muscular dystrophy and related neuromuscular diseases were extremely limited, MDA began calling upon individuals living with these diseases to…

Josh Corbett[Image description: Josh, a light-skinned boy with short brown hair, stands in front of a brick wall wearing a black jacket, gray shirt, red shorts, and blue sneakers.]  …

Researchers at Apellis Pharmaceuticals are seeking individuals living with sporadic amyotrophic lateral sclerosis (ALS) to participate in a two-year phase 2 trial (MERIDIAN) to determine the efficacy of the investigational drug…

When you can’t speak for yourself, these important documents help you protect yourself and your dependents

Researchers at Johns Hopkins University School of Medicine are seeking individuals living with amyotrophic lateral sclerosis (ALS), primary lateral sclerosis (PLS), or a related motor neuron disease to participate in a…

Researchers at Audentes Therapeutics, an Astellas company, are seeking individuals living with late-onset Pompe disease (LOPD) to participate in a phase 1/2 study to confirm safety and efficacy of the investigational…

Lily Ruta shows off the nebula jar craft she made during virtual MDA Summer Camp. Last summer, MDA brought the magic of Summer Camp to kids in the comfort of…