Archives
From a Distance
Students and educators share their experiences with online learning
Tags: COVID-19, Education, Featured Content, Parenting, Resources, Technology
Clinical Trials During COVID 19
What you need to know about research during the pandemic
Tags: COVID-19, Clinical Trials, Resources, Web Exclusive
Business Unusual
Can a global pandemic be a blessing in disguise? For this fashion entrepreneur, the answer is yes
Tags: COVID-19, Employment, From Where I Sit
2020 Reader Photo Contest Winners
Meet the winners of Quest’s Lasting Impression Photo Contest
What You Need to Know About Open Enrollment in 2020
Open enrollment — the period each year when people are eligible to purchase new insurance or make changes to their existing insurance plans — is upon us. Buying health insurance…
Tags: Healthcare, Insurance, Resources
Once a Wild Idea, Successful First-Generation Exon-Skipping Therapies Pave the Way for Personalized Treatments
In 1996, MDA provided a small starter grant to Dr. Steve Wilton, a primary investigator at the University of Western Australia in Perth, for research into what scientists then thought…
Tags: Clinical Trials, Drug Approval, Drug Development, Exon Skipping, Innovation, Research, Research Advances
10 Tips for Finding Personal Care Attendants
Personal care attendants (PCAs) play a crucial role in helping people in the neuromuscular disease community day to day. Whether they’re assisting with activities of daily living or managing medical…
Queer Eye’s “Silver Lining” Sweeneys Stay in the Moment
The Sweeneys — John, 58; his wife, Jennifer, 50; and daughters Dana, 24; Rachel, 22; and Ashley, 19 — live in a rowhouse in a small suburb outside of Philadelphia.…
Tags: Caregiving, Relationships
Do you know your employment rights?
As we wrap up National Disability Employment Awareness Month, it is vital those living with a disability know their employment rights, learn what to do if they feel their employer…
Tags: Advocacy Updates, Employment, Resources
Scholar Rock Announces Positive Results from Interim Analysis of TOPAZ Phase 2 Study of SRK-015 to Treat SMA
On Oct. 27, Scholar Rock announced positive results from an interim analysis of its phase 2 clinical trial evaluating SRK-015, a therapy for treating spinal muscular atrophy (SMA). After six months…