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Featured Article | Inclusion, Independence, Lifestyle

From a Distance

Students and educators share their experiences with online learning

Tags: COVID-19, Education, Featured Content, Parenting, Resources, Technology


Featured Article | Science + Research

Clinical Trials During COVID 19

What you need to know about research during the pandemic

Tags: COVID-19, Clinical Trials, Resources, Web Exclusive


Featured Article | Independence, Personal Stories

Business Unusual

Can a global pandemic be a blessing in disguise? For this fashion entrepreneur, the answer is yes

Tags: COVID-19, Employment, From Where I Sit


Featured Article | Personal Stories

2020 Reader Photo Contest Winners

Meet the winners of Quest’s Lasting Impression Photo Contest

Tags: College, Education, Lasting Impression, Relationships, Staying Active


Blog Post | Advocacy, Health

What You Need to Know About Open Enrollment in 2020

Open enrollment — the period each year when people are eligible to purchase new insurance or make changes to their existing insurance plans — is upon us. Buying health insurance…

Tags: Healthcare, Insurance, Resources


Blog Post | Science + Research

Once a Wild Idea, Successful First-Generation Exon-Skipping Therapies Pave the Way for Personalized Treatments

In 1996, MDA provided a small starter grant to Dr. Steve Wilton, a primary investigator at the University of Western Australia in Perth, for research into what scientists then thought…

Tags: Clinical Trials, Drug Approval, Drug Development, Exon Skipping, Innovation, Research, Research Advances


Blog Post | Independence, Lifestyle

10 Tips for Finding Personal Care Attendants

Personal care attendants (PCAs) play a crucial role in helping people in the neuromuscular disease community day to day. Whether they’re assisting with activities of daily living or managing medical…

Tags: Caregiving, Healthcare, Insurance, Personal Care Attendants, Resources


Blog Post | Independence, Personal Stories

Queer Eye’s “Silver Lining” Sweeneys Stay in the Moment

The Sweeneys — John, 58; his wife, Jennifer, 50; and daughters Dana, 24; Rachel, 22; and Ashley, 19 — live in a rowhouse in a small suburb outside of Philadelphia.…

Tags: Caregiving, Relationships


Blog Post | Advocacy, Independence

Do you know your employment rights?

As we wrap up National Disability Employment Awareness Month, it is vital those living with a disability know their employment rights, learn what to do if they feel their employer…

Tags: Advocacy Updates, Employment, Resources


Blog Post | News, Research

Scholar Rock Announces Positive Results from Interim Analysis of TOPAZ Phase 2 Study of SRK-015 to Treat SMA

On Oct. 27, Scholar Rock announced positive results from an interim analysis of its phase 2 clinical trial evaluating SRK-015, a therapy for treating spinal muscular atrophy (SMA). After six months…

Tags: Clinical Trials, Drug Development, Healthcare, Research, Research Advances