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The Double Take Fashion Show, a collaboration between the spinal muscular atrophy (SMA) community, Genentech’s SMA My Way, and Open Style Lab (OSL), kicked off 2022 New York Fashion Week…

Election Day is Tuesday, November 8th.  This year, all 435 seats in the U.S. House of Representatives, 35 Senate seats, and 36 gubernatorial seats are on the ballot, in addition…

Researchers at University of Florida are seeking boys living with DMD to participate in a study designed to identify new imaging (MRI) measures that could be used to test drugs or…

Researchers at Saint Elizabeth University are seeking adults with spinal muscular atrophy (SMA) to participate in a survey about life with SMA. The goal of this survey is to help understand…

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. This month,…

It’s simple. The Newborn Screening Program saves lives. When babies are screened for certain neuromuscular conditions early, it leads to better outcomes. As we recognize both Newborn Screening Awareness Month…

Fall and winter tips for cold weather respiratory health from a respiratory therapist.

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. Success looks…

Charlie Mabry, a video game streamer known as CharlieHarley_1 to his growing base of followers on  TikTok and Twitch, is using his passion for video games to build a community…

Over the past five years, medical and scientific advances have increased overall health and life expectancy in people with the neuromuscular disease (NMD) spinal muscular atrophy (SMA). SMA causes progressive…