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“Don’t hope for a miracle. Make one,” is the powerful tag line from Extraordinary Measures a 2010 drama film starring Brendan Fraser, Harrison Ford, and Keri Russell. The movie is…

Sometimes we think we have life figured out but then in the blink of an eye things can change.  I lived 30 years of my life healthy and active.  Sports,…

Learn why accessible playgrounds and inclusive playgrounds are good for everyone, how to find them, and how to advocate for them in your community.

Learn how to develop your child’s ability to make friends in school

When you live with rare a neuromuscular disease, you should know what steps to take in a medical emergency with first responders and in the hospital.

The FDA’s approval of Elevidys, the first gene therapy for Duchenne muscular dystrophy (DMD) brings hopes and concerns for families in the MDA community.

When a neuromuscular disease impairs chewing and swallowing, consider a feeding tube for good nutrition.

Packing for vacation when you live with a disability requires a little extra planning and preparation. Travel often demands additional considerations to provide easy access to essentials and ensure that…

Charlotte and Elizabeth Madole. For many individuals living with a rare disease, the road to diagnosis can be extremely challenging, especially when it involves two co-existing diseases where two parts…

I feel like our mental health is something we don’t discuss enough. I want to share how Muscular Dystrophy has affected my mental health, because honestly speaking, there have been…