Archives
FDA Approves MTPA’s RADICAVA ORS for Treatment of ALS
FDA grants approval to an oral suspension of edaravone (RADICAVA ORS) for the treatment of amyotrophic lateral sclerosis (ALS).
Tags: Drug Approval, Healthcare, Research
A Successful In-Person Conference
MDA’s 2022 Clinical & Scientific Conference was the world’s largest meeting on neuromuscular disease care In mid-March, more than 1,000 people gathered in Nashville, Tennessee, for MDA’s 2022 Clinical &…
Tags: Access MDA, Ambassadors, Amy, Clinical Trials, Drug Approval, Drug Development, Exon Skipping, Gene Therapy, MDA Clinical and Scientific Conference, Research, Research Advances
Outdoor Recreation Opportunities for Everyone
A growing number of parks and recreation areas accommodate people with disabilities who are looking for adventure with accessibility.
Tags: Community, Resources, Staying Active, Travel
Brain-Computer Interface Technology Could Improve Life for Millions
It’s been half a century since University of California, Los Angeles, computer science professor Jacques Vidal coined the term “brain-computer interface” (BCI) and produced the first peer-reviewed papers on the…
Durable Medical Equipment Support through MDA
MDA’s National Resource Center and Family Support Team work alongside families to help locate financial resources, provide educational materials, and secure prescribed durable medical equipment (DME).
The Year of Independence
Honorable Robert Pipia’s, a judge in Nassau County, New York living with an undiagnosed neuromuscular disease, shares his story of determination, resilience, and advocacy.
Tags: College, Community, Education, Employment, Relationships, Staying Active, Year of Independence
MDA Tribute Tour Takes Nashville: A Night at the Grand Ole Opry
Declared an official “Day of Recognition” by Tennessee Governor Bill Lee, the MDA Tribute Tour celebration in Nashville honored three local champions for the cause.
Tags: Community
Research Study Alert: Study of Wearable Gait Sensor in People with or without Neuromuscular Disease
Researchers seek individuals with or without neuromuscular disease to participate in a research study for a wearable gait sensor belt.
Tags: Healthcare, Innovation, Research Study Alert
Quest for Success: Matthew Lawson
Matthew Lawson, an IT Manager living with SMA shares how he pursued his education, gained employment, and achieved his goal of independence.
Tags: College, Community, Education, Employment, Personal Care Attendants, Quest for Success, Resources, Year of Independence
FDA Approves Alexion’s Ultomiris for Treatment of gMG
FDA grants drug approval to ravulizumab (Ultomiris) for the treatment of generalized myasthenia gravis (gMG) in adults who test positive for the anti-acetylcholine receptor (AChR) antibody.