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Blog Post | Health, News

FDA Approves MTPA’s RADICAVA ORS for Treatment of ALS

FDA grants approval to an oral suspension of edaravone (RADICAVA ORS) for the treatment of amyotrophic lateral sclerosis (ALS).

Tags: Drug Approval, Healthcare, Research


Featured Article | News, Research, Science + Research

A Successful In-Person Conference

MDA’s 2022 Clinical & Scientific Conference was the world’s largest meeting on neuromuscular disease care In mid-March, more than 1,000 people gathered in Nashville, Tennessee, for MDA’s 2022 Clinical &…

Tags: Access MDA, Ambassadors, Amy, Clinical Trials, Drug Approval, Drug Development, Exon Skipping, Gene Therapy, MDA Clinical and Scientific Conference, Research, Research Advances


Blog Post | Independence, Lifestyle

Outdoor Recreation Opportunities for Everyone

A growing number of parks and recreation areas accommodate people with disabilities who are looking for adventure with accessibility.

Tags: Community, Resources, Staying Active, Travel


Blog Post | Science + Research

Brain-Computer Interface Technology Could Improve Life for Millions

It’s been half a century since University of California, Los Angeles, computer science professor Jacques Vidal coined the term “brain-computer interface” (BCI) and produced the first peer-reviewed papers on the…

Tags: Healthcare, Innovation, MDA Clinical and Scientific Conference, Research, Research Advances


Blog Post | Independence

Durable Medical Equipment Support through MDA

MDA’s National Resource Center and Family Support Team work alongside families to help locate financial resources, provide educational materials, and secure prescribed durable medical equipment (DME).

Tags: Community Education, Equipment and Assistive Devices, MDA Resource Center, Resources


Blog Post | Independence, Personal Stories

The Year of Independence

Honorable Robert Pipia’s, a judge in Nassau County, New York living with an undiagnosed neuromuscular disease, shares his story of determination, resilience, and advocacy.

Tags: College, Community, Education, Employment, Relationships, Staying Active, Year of Independence


Blog Post | Independence, News

MDA Tribute Tour Takes Nashville: A Night at the Grand Ole Opry

Declared an official “Day of Recognition” by Tennessee Governor Bill Lee, the MDA Tribute Tour celebration in Nashville honored three local champions for the cause.

Tags: Community


Blog Post | Science + Research

Research Study Alert: Study of Wearable Gait Sensor in People with or without Neuromuscular Disease

Researchers seek individuals with or without neuromuscular disease to participate in a research study for a wearable gait sensor belt.

Tags: Healthcare, Innovation, Research Study Alert


Blog Post | Personal Stories

Quest for Success: Matthew Lawson

Matthew Lawson, an IT Manager living with SMA shares how he pursued his education, gained employment, and achieved his goal of independence.

Tags: College, Community, Education, Employment, Personal Care Attendants, Quest for Success, Resources, Year of Independence


| News, Science + Research

FDA Approves Alexion’s Ultomiris for Treatment of gMG

FDA grants drug approval to ravulizumab (Ultomiris) for the treatment of generalized myasthenia gravis (gMG) in adults who test positive for the anti-acetylcholine receptor (AChR) antibody.

Tags: Drug Approval, Healthcare, Innovation, Research Advances