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Blog Post | Independence, Lifestyle

Tips for Better Hygiene With a Disability — And Why It Matters

Having good hygiene with a disability, especially with a neuromuscular disease, can be challenging. Here are some suggestions from experts to make daily cleansing activities easier.

Tags: Caregiving, Featured Content, Resources


Blog Post | Independence

Easy Clean: Bathing Products for People with Disabilities

If you have a neuromuscular disease, is there anything more energy-draining than taking a shower or bath? It’s important, though, and not just because you don’t want to stink up the…

Tags: Equipment and Assistive Devices, Resources


Blog Post | Health, Science + Research

MDA Celebrates the Approval of Relyvrio from Amylyx for the Treatment of ALS

On Sept 29, the US Food and Drug Administration (FDA) granted approval of sodium phenylbutyrate/taurursodiol (Relyvrio) for the treatment of people with amyotrophic lateral sclerosis (ALS). To date, Relyvrio is…

Tags: Drug Approval, Research Advances


Blog Post | Advocacy, Independence, Lifestyle

How the ADA’s Employment Rights Apply to Job Seekers

Learn how the ADA protects rights for job applicants during the interviewing and hiring processes.

Tags: Employment


Blog Post | Independence, News, Personal Stories

How a Man With DMD Won His Right to Live Independently

A man with Duchenne muscular dystrophy (DMD) won his right to live independently. Young adults with disabilities should know about this legal case.

Tags: Featured Content, Young Adults


Blog Post | Finding a Diagnosis, Science + Research

Simply Stated: Updates in LGMD Research

Limb-girdle muscular dystrophy (LGMD) is a diverse group of inherited disorders that cause progressive weakness in the hip and shoulder muscles. Weakening and thinning of these muscles in LGMD can lead…

Tags: Drug Development, Healthcare, Research, Simply Stated


Blog Post | Science + Research

2023 MDA Clinical & Scientific Conference

The 2023 MDA Clinical & Scientific Professional Conference, which is consistently unsurpassed in terms of impact, will take place next March in Dallas Texas. In 2022, the conference had 1,261…

Tags: Healthcare, Innovation, MDA Clinical and Scientific Conference


Blog Post | Inclusion, Independence, Personal Stories

Quest for Success – High School Edition: Leah Zelaya

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. This month,…

Tags: Community, Education, Employment, Leah, Quest for Success


Blog Post | News, Research, Science + Research

Muscular Dystrophy Association Announces 70 Research Grants Totaling Over $17 Million

On Sept.19, the Muscular Dystrophy Association (MDA) announced the awarding of 70 new grants totaling over $17 million toward neuromuscular disease research. The newly funded projects aim to advance research…

Tags: Clinical Trials, Drug Development, Grants, Innovation, Research


Blog Post | Inclusion, Lifestyle, News

Accessible Fashion Hits the Runway with Double Take Fashion Show

The Double Take Fashion Show, a collaboration between the spinal muscular atrophy (SMA) community, Genentech’s SMA My Way, and Open Style Lab (OSL), kicked off 2022 New York Fashion Week…

Tags: Community, Year of Independence