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Blog Post | Finding a Diagnosis, Independence

Staying Connected with MDA

To stay connected with MDA Care Specialists and receive the latest updates on MDA news and events, it is important that you ensure that your contact information is up to…

Tags: Healthcare, MDA Care Centers, MDA Resource Center


Blog Post | Personal Stories

MDA Summer Camp: Zach’s Note to Younger Self

In a note to his younger self, Zach Jorgenson shares how his experience at MDA Summer Camp impacted his life.

Tags: Relationships, Staying Active, Summer Camp, Volunteers


Blog Post | Personal Stories

Quest for Success: Nicole Lahoud

Nicole Lahoud, a high school teacher, offers unique insight into the value of structuring a classroom to meet the needs of everyone.

Tags: College, Education, Employment, Healthcare, Parenting, Personal Care Attendants, Quest for Success, Resources, Year of Independence


Blog Post | Advocacy

Ensuring Economic Independence for the Neuromuscular Community

Creating true economic independence is part of a new MDA advocacy initiative called Ensuring Economic Independence.

Tags: Advocacy Updates, Employment, Resources, Year of Independence


Blog Post | Science + Research

Research Study Alert: Survey of Pain Self-Management and Well-Being in People with General Pain or with Myotonic Dystrophy

Researchers at Newcastle University are seeking adults living with general pain or with myotonic dystrophy (DM) to participate in a survey.

Tags: Research Study Alert


Featured Article | Lifestyle

View From the Top

Hiker Skye Lemmen raised funds for MDA while trekking the Pacific Crest Trail When Skye Lemmen, of Grand Rapids, Michigan, decided to hike the Pacific Crest Trail, she knew she…

Tags: Community, Featured Content, Fundraising, Lasting Impression, Relationships


Featured Article | Health, Research

Family Inheritance

Most neuromuscular diseases are genetic disorders, we share how genetic neuromuscular diseases are inherited.

Tags: Featured Content, Gene Therapy, Genetic Testing, Healthcare, Research


Blog Post | Personal Stories, Science + Research

Life-Saving PJ’s Protocol Was Inspired by a Person With DMD

PJ’s Protocol outlines procedures that healthcare providers should follow for patients who depend on corticosteroids.

Tags: Community Education, Healthcare, Parenting, Relationships, Research


Blog Post | Science + Research

Simply Stated: What is Duchenne Muscular Dystrophy?

Research advances and the promise of better therapeutics on the horizon offer hope for people living with Duchenne muscular dystrophy.

Tags: Clinical Trials, Community Education, Drug Approval, Drug Development, Exon Skipping, Gene Therapy, Genetic Testing, Healthcare, Innovations, Research, Simply Stated


Featured Article | Independence, Lifestyle

Working Together

How to establish and maintain good relationships with personal care attendants Anyone who lives with a neuromuscular disease that affects mobility knows that it often takes a village of caregivers…

Tags: Featured Content, Personal Care Attendants, Relationships, Resources, Staying Active