Archives
Tips for Better Hygiene With a Disability — And Why It Matters
Having good hygiene with a disability, especially with a neuromuscular disease, can be challenging. Here are some suggestions from experts to make daily cleansing activities easier.
Tags: Caregiving, Featured Content, Resources
Easy Clean: Bathing Products for People with Disabilities
If you have a neuromuscular disease, is there anything more energy-draining than taking a shower or bath? It’s important, though, and not just because you don’t want to stink up the…
MDA Celebrates the Approval of Relyvrio from Amylyx for the Treatment of ALS
On Sept 29, the US Food and Drug Administration (FDA) granted approval of sodium phenylbutyrate/taurursodiol (Relyvrio) for the treatment of people with amyotrophic lateral sclerosis (ALS). To date, Relyvrio is…
Tags: Drug Approval, Research Advances
How the ADA’s Employment Rights Apply to Job Seekers
Learn how the ADA protects rights for job applicants during the interviewing and hiring processes.
Tags: Employment
How a Man With DMD Won His Right to Live Independently
A man with Duchenne muscular dystrophy (DMD) won his right to live independently. Young adults with disabilities should know about this legal case.
Tags: Featured Content, Young Adults
Simply Stated: Updates in LGMD Research
Limb-girdle muscular dystrophy (LGMD) is a diverse group of inherited disorders that cause progressive weakness in the hip and shoulder muscles. Weakening and thinning of these muscles in LGMD can lead…
Tags: Drug Development, Healthcare, Research, Simply Stated
2023 MDA Clinical & Scientific Conference
The 2023 MDA Clinical & Scientific Professional Conference, which is consistently unsurpassed in terms of impact, will take place next March in Dallas Texas. In 2022, the conference had 1,261…
Quest for Success – High School Edition: Leah Zelaya
As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. This month,…
Tags: Community, Education, Employment, Leah, Quest for Success
Muscular Dystrophy Association Announces 70 Research Grants Totaling Over $17 Million
On Sept.19, the Muscular Dystrophy Association (MDA) announced the awarding of 70 new grants totaling over $17 million toward neuromuscular disease research. The newly funded projects aim to advance research…
Tags: Clinical Trials, Drug Development, Grants, Innovation, Research
Accessible Fashion Hits the Runway with Double Take Fashion Show
The Double Take Fashion Show, a collaboration between the spinal muscular atrophy (SMA) community, Genentech’s SMA My Way, and Open Style Lab (OSL), kicked off 2022 New York Fashion Week…
Tags: Community, Year of Independence