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Featured Article | Science + Research

Researchers Want to Know More About Oculopharyngeal Muscular Dystrophy

A Q&A with Anita Corbett, PhD

Tags: Research, Research Advances, Spotlight


Featured Article | Health, Science + Research

One in a Million

While there are still challenges to researching therapies for ultra-rare neuromuscular diseases, many in the field see reasons for hope

Tags: Drug Development, Featured Content, Fundraising, Gene Therapy, Grants, Research, Research Advances


Featured Article | Personal Stories

One Bike Four Stories

Chris Benyo With the help of Team Momentum, a racing wheelchair connected and impacted multiple MDA families

Tags: Fundraising, Lasting Impression, Staying Active, Team Momentum


Featured Article | Independence, Personal Stories

Living Creatively

Releasing my first album took a lifetime of imagination and determination

Tags: Education, Employment, From Where I Sit, Year of Independence


Featured Article | Advocacy, Independence, Lifestyle

Help Wanted

Finding accessible employment in the work-from-home era

Tags: Employment, Featured Content, Resources, Technology, Year of Independence


Featured Article | Independence

Education Within Reach

Access Workshop helps families overcome barriers to school

Tags: Access MDA, Education, Parenting


Featured Article | Advocacy, Inclusion

Creating Awareness

Educating others about disability can be a heavy lift, but advocates in our community say it’s worth the effort

Tags: Featured Content, Mental Health, Relationships


Featured Article | Advocacy, Inclusion

Advocating Against Ableism

These advocates have learned to recognize and call out ableism where they see it

Tags: Spotlight, Web Exclusive, Young Adults


Blog Post | News, Science + Research

Clinical Trial Alert: Phase 2 Study of Ifetroban in Individuals with DMD

Researchers at Cumberland Pharmaceuticals Inc. are seeking boys and men living with Duchenne muscular dystrophy (DMD) to participate in a phase 2 clinical trial to evaluate the safety, efficacy, and duration…

Tags: Clinical Trial Alert, Clinical Trials, Drug Development, Research


Blog Post | News, Science + Research

Clinical Trial Alert: Phase 2/3 and Open-Label Extension Study of ASP0367 in Individuals with Primary Mitochondrial Myopathy

Researchers at Astellas Pharma Inc. are seeking individuals living with primary mitochondrial myopathy (PMM) to participate in a phase 2/3 clinical trial and open-label extension to evaluate safety, tolerability and preliminary…

Tags: Clinical Trial Alert, Clinical Trials, Drug Development, Research