Archives
Researchers Want to Know More About Oculopharyngeal Muscular Dystrophy
A Q&A with Anita Corbett, PhD
Tags: Research, Research Advances, Spotlight
One in a Million
While there are still challenges to researching therapies for ultra-rare neuromuscular diseases, many in the field see reasons for hope
Tags: Drug Development, Featured Content, Fundraising, Gene Therapy, Grants, Research, Research Advances
One Bike Four Stories
Chris Benyo With the help of Team Momentum, a racing wheelchair connected and impacted multiple MDA families
Living Creatively
Releasing my first album took a lifetime of imagination and determination
Help Wanted
Finding accessible employment in the work-from-home era
Education Within Reach
Access Workshop helps families overcome barriers to school
Tags: Access MDA, Education, Parenting
Creating Awareness
Educating others about disability can be a heavy lift, but advocates in our community say it’s worth the effort
Advocating Against Ableism
These advocates have learned to recognize and call out ableism where they see it
Tags: Spotlight, Web Exclusive, Young Adults
Clinical Trial Alert: Phase 2 Study of Ifetroban in Individuals with DMD
Researchers at Cumberland Pharmaceuticals Inc. are seeking boys and men living with Duchenne muscular dystrophy (DMD) to participate in a phase 2 clinical trial to evaluate the safety, efficacy, and duration…
Clinical Trial Alert: Phase 2/3 and Open-Label Extension Study of ASP0367 in Individuals with Primary Mitochondrial Myopathy
Researchers at Astellas Pharma Inc. are seeking individuals living with primary mitochondrial myopathy (PMM) to participate in a phase 2/3 clinical trial and open-label extension to evaluate safety, tolerability and preliminary…