Archives
How to Speak Up for Your Healthcare Needs in Hospitals and Doctors’ Offices
Knowing how to effectively communicate your wishes and needs to doctors in offices and hospitals results in better healthcare.
The Best Way to Prepare People With Disabilities and Their Communities for Natural Disasters
With natural disasters on the rise, here’s how people with disabilities can prepare and increase awareness of their needs in their communities.
Tags: Community, Featured Content
MDA On the Road Launches at High-Impact Conferences to Advocate for Neuromuscular Community
MDA On the Road launches a journey to advocate for the neuromuscular disease community with appearances at high-impact conferences.
How Calls from the MDA Family Support Team Make a Difference
When you join MDA, you become a member of an active, broader, and supported neuromuscular community. One way that MDA stays connected with our families through every step of their…
Tags: Community, MDA Care Centers, Resources
How Protective and Advocacy Organizations Help People with Disabilities
Protective and advocacy organizations offer legal support people for with disabilities to exercise their rights.
Tags: Employment, Featured Content, Resources
Clinical Trial Alert: Phase 2 Study of Vamorolone in Adults with BMD
Researchers at the University of Pittsburgh are seeking adults living with Becker muscular dystrophy (BMD) to participate in a phase 2 clinical trial to evaluate the safety and efficacy of vamorolone…
Tags: Clinical Trial Alert
Research Study Alert: Natural History Study in Adults Receiving Treatment for SMA
Researchers at Ohio State University are seeking adults living with spinal muscular atrophy (SMA) to participate in a 12-month natural history study. The objective of this observational study is to look at…
Tags: Research Study Alert
Research Study Alert: Cognition Study in Boys with DMD and their Biological Mothers
Researchers at Virginia Commonwealth University are seeking boys living with Duchenne muscular dystrophy (DMD), as well their biological mothers who may or may not carry DMD-causing genetic variants, to participate in a…
Tags: Research Study Alert
Quest for Success: Dr. Chris Rosa
As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. Success looks…
A Magic Collaboration at the MDA Tribute Tour in Boston
Magic Wheelchair has been making custom, adaptable wheelchair costumes for seven years, having provided one-of-a-kind costumes to over 300 individuals living with a disability. Just in time for Halloween, the…
Tags: Community, Fill the Boot, MDA Tribute Tour