Archives
Research Study Alert: Survey on the Mental Health Experience of Parents and Guardians of Children With DMD
Researchers at the University of Pittsburgh invite parents and guardians of children with Duchenne muscular dystrophy (DMD) to participate in a study that investigates whether they utilize mental health resources and…
Tags: Caregiving, Mental Health, Parenting, Research
Research Study Alert: LGMD2I Natural History Study
Researchers at ML Bio Solutions are seeking individuals living with limb-girdle muscular dystrophy type 2I (LGMD2I, LGMD R9-FKRP-related) to participate in a 12-month natural history study. The objective of this observational study…
Tags: Clinical Trials, Research
Meditation and Neuromuscular Disease
Living with neuromuscular disease (NMD) involves specific challenges — some physical, some strategic, some structural — that can create stress and contribute to changes in both physical and mental health.…
Tags: MDA Q and A, Mental Health, Resources
MDA Advocacy’s 2020 Year in Review
There’s no doubt 2020 has been a challenging year, but the commitment and passion of our MDA advocates have truly been a bright spot. As we close out the year,…
The Way of the Future
MDA Care Centers innovate to bring healthcare into the home
The Search for Inclusion Body Myositis Treatment
A Q&A with Anthony A. Amato, MD
From a Distance
Students and educators share their experiences with online learning
Tags: COVID-19, Education, Featured Content, Parenting, Resources, Technology
Clinical Trials During COVID 19
What you need to know about research during the pandemic
Tags: COVID-19, Clinical Trials, Resources, Web Exclusive
Business Unusual
Can a global pandemic be a blessing in disguise? For this fashion entrepreneur, the answer is yes
Tags: COVID-19, Employment, From Where I Sit
2020 Reader Photo Contest Winners
Meet the winners of Quest’s Lasting Impression Photo Contest