Archives




Featured Article | Health, Science + Research

How to Make a Decision About a Clinical Trial

Clinical trials come with great hope and also great unknowns. Here’s how to weigh all the factors and make the best choice for yourself and your family.

Tags: Clinical Trials, Healthcare, Parenting, Resources, Web Exclusive


Blog Post | News, Science + Research

Clinical Trial Alert: Phase 3 Study of ION363 in Individuals with ALS with Fused in Sarcoma Mutations (FUS-ALS)

Researchers at IONIS Pharmaceuticals are seeking individuals living with amyotrophic lateral sclerosis (ALS) with fused in sarcoma mutations (FUS-ALS) to participate in a phase 3 clinical trial to determine the efficacy…

Tags: Clinical Trial Alert, Clinical Trials, Drug Development, Research


Featured Article | Health

MDA Q A Top of Mind

The Resource Center answers readers’ questions

Tags: COVID-19, Gene Therapy, MDA Q and A, MDA Resource Center, Staying Active


Featured Article | Independence, Lifestyle

Find the Right Resources

Follow these tips to gather the tools and support you need to live well

Tags: Featured Content, MDA Care Centers, MDA Resource Center, National Connections Program, Resources


Featured Article | Science + Research

How Viral Vectors Deliver the Goods in Gene Therapy

Viral vectors are an important area of research in the exciting field of gene-targeted therapies

Tags: Featured Content, Gene Therapy, Innovation, Resaerch, Research Advances


Featured Article | Science + Research

Expanding Knowledge on GNE Myopathy

A Q&A with Tahseen Mozaffar, MD

Tags: Gene Therapy, Healthcare, Innovation, MDA Q and A, Research, Spotlight


Featured Article | Health

Breaking Healthcare Barriers

MDA Care Centers strive to expand access to quality care

Tags: Featured Content, Healthcare, MDA Care Centers, MDA Resource Center, National Connections Program, Resources, Summer Camp


Featured Article | Personal Stories, Science + Research

A Little Piece of the Future

Chelsea Moeller and her mother, Laura, both participated in the phase 2b Fulcrum ReDUX4 clinical trial last year. My experience participating in an FSHD clinical trial

Tags: Clinical Trials, From Where I Sit, Relationships


Blog Post | News, Science + Research

The Search for ALS Treatments Continues

May is Amyotrophic Lateral Sclerosis (ALS) Awareness Month, and while this past year was different — given the global pandemic we all endured — the research and support for finding new treatments…

Tags: Clinical Trials, Research


Featured Article | Health

Support for Your Journey

The MDA Resource Center connects people in the neuromuscular disease community with helpful resources and information

Tags: Web Exclusive