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How to Make a Decision About a Clinical Trial
Clinical trials come with great hope and also great unknowns. Here’s how to weigh all the factors and make the best choice for yourself and your family.
Tags: Clinical Trials, Healthcare, Parenting, Resources, Web Exclusive
Clinical Trial Alert: Phase 3 Study of ION363 in Individuals with ALS with Fused in Sarcoma Mutations (FUS-ALS)
Researchers at IONIS Pharmaceuticals are seeking individuals living with amyotrophic lateral sclerosis (ALS) with fused in sarcoma mutations (FUS-ALS) to participate in a phase 3 clinical trial to determine the efficacy…
Find the Right Resources
Follow these tips to gather the tools and support you need to live well
Tags: Featured Content, MDA Care Centers, MDA Resource Center, National Connections Program, Resources
How Viral Vectors Deliver the Goods in Gene Therapy
Viral vectors are an important area of research in the exciting field of gene-targeted therapies
Expanding Knowledge on GNE Myopathy
A Q&A with Tahseen Mozaffar, MD
Tags: Gene Therapy, Healthcare, Innovation, MDA Q and A, Research, Spotlight
Breaking Healthcare Barriers
MDA Care Centers strive to expand access to quality care
Tags: Featured Content, Healthcare, MDA Care Centers, MDA Resource Center, National Connections Program, Resources, Summer Camp
A Little Piece of the Future
Chelsea Moeller and her mother, Laura, both participated in the phase 2b Fulcrum ReDUX4 clinical trial last year. My experience participating in an FSHD clinical trial
The Search for ALS Treatments Continues
May is Amyotrophic Lateral Sclerosis (ALS) Awareness Month, and while this past year was different — given the global pandemic we all endured — the research and support for finding new treatments…
Tags: Clinical Trials, Research
Support for Your Journey
The MDA Resource Center connects people in the neuromuscular disease community with helpful resources and information
Tags: Web Exclusive