Archives

Declared an official “Day of Recognition” by Tennessee Governor Bill Lee, the MDA Tribute Tour celebration in Nashville honored three local champions for the cause.

Researchers seek individuals with or without neuromuscular disease to participate in a research study for a wearable gait sensor belt.

Matthew Lawson, an IT Manager living with SMA shares how he pursued his education, gained employment, and achieved his goal of independence.

FDA grants drug approval to ravulizumab (Ultomiris) for the treatment of generalized myasthenia gravis (gMG) in adults who test positive for the anti-acetylcholine receptor (AChR) antibody.

New understanding of inclusion body myositis (IBM) a rare, progressive muscle disease with chronic muscle inflammation and weakness.

Jon Burcaw, an MDA supporter through Ride for Life, and his son, Shane Burcaw, an MDA summer-camper-turned-influencer, share their thoughts.

Our MDA Volunteer Committee shares what volunteering means to them, as we thank them on National Volunteer Recognition Day.

An observational trial in individuals with Becker muscular dystrophy (BMD) in under way to assess functional measures and imaging endpoints. 

In addition to being fun, participating in adaptive sports has other benefits for those with physical disabilities.

Improvements are needed to increase diversity in rare disease clinical trials and research in the United States.