Archives
Alcohol and Neuromuscular Disease
It’s no secret that alcohol consumption can have an impact on one’s health. Some studies have shown benefits for the heart and circulatory system from moderate drinking. On the other…
Tags: Healthcare, MDA Care Center, Nutrition
Connecting With Our Young Adults
Here at MDA, we are working to ensure all contact information is up-to-date for those who are registered in order to serve you as well as we possibly can. If…
Tags: College, Education, Let's Play, MDA Care Centers, MDA Resource Center, Mental Health, Resources, Transportation, Young Adults
The Latest on Mitochondrial DNA Depletion Deletion Syndrome
Michio Hirano, MD (fourth from right), and his research team gather with the Coiculescu family, whose sons received an experimental treatment for TK2 deficient myopathy through a compassionate use study.…
Tags: Gene Therapy, Healthcare, Innovation, Research, Spotlight
Mental Health Is for Everyone
Erasing stigma and finding support for mental health
Making Peace
Joanna Buoniconti has known she would be a writer since she was 8 years old. Writing helps me process emotions about living with a progressive disease
Tags: From Where I Sit, Mental Health
Keeping a Sense of Humor
Todd Kelly’s strong support system includes his wife, Laurie. Acknowledging loss with laughter helps me maintain emotional balance
Tags: From Where I Sit, Mental Health
Embrace Your Body
Queen, who lives with Bethlem myopathy When it comes to body positivity, perspective matters. These advocates are changing how the world sees them — and how they view themselves, too
Tags: Featured Content, Mental Health, Resources
Demystifying Drug Prices
Why are new therapies for neuromuscular diseases so expensive?
Claiming My Courage
Jessica Stephan and her son, who is now 9 years old. I had to face my son’s diagnosis to take better care of my family and myself
Tags: From Where I Sit, Parenting