Archives




Blog Post | Health, Lifestyle

Alcohol and Neuromuscular Disease

It’s no secret that alcohol consumption can have an impact on one’s health. Some studies have shown benefits for the heart and circulatory system from moderate drinking. On the other…

Tags: Healthcare, MDA Care Center, Nutrition


Blog Post | Get Involved

Connecting With Our Young Adults

Here at MDA, we are working to ensure all contact information is up-to-date for those who are registered in order to serve you as well as we possibly can. If…

Tags: College, Education, Let's Play, MDA Care Centers, MDA Resource Center, Mental Health, Resources, Transportation, Young Adults


Featured Article | Science + Research

The Latest on Mitochondrial DNA Depletion Deletion Syndrome

Michio Hirano, MD (fourth from right), and his research team gather with the Coiculescu family, whose sons received an experimental treatment for TK2 deficient myopathy through a compassionate use study.…

Tags: Gene Therapy, Healthcare, Innovation, Research, Spotlight


Featured Article | Health, Lifestyle

Mental Health Is for Everyone

Erasing stigma and finding support for mental health

Tags: Featured Content, Mental Health, Relationships, Resources


Featured Article | Lifestyle

MDA Q A Let s Talk

The Resource Center answers readers’ questions

Tags: MDA Q and A, MDA Resource Center, Mental Health, Relationships


Featured Article | Personal Stories

Making Peace

Joanna Buoniconti has known she would be a writer since she was 8 years old. Writing helps me process emotions about living with a progressive disease

Tags: From Where I Sit, Mental Health


Featured Article | Personal Stories

Keeping a Sense of Humor

Todd Kelly’s strong support system includes his wife, Laurie. Acknowledging loss with laughter helps me maintain emotional balance

Tags: From Where I Sit, Mental Health


Featured Article | Health, Lifestyle

Embrace Your Body

Queen, who lives with Bethlem myopathy When it comes to body positivity, perspective matters. These advocates are changing how the world sees them — and how they view themselves, too

Tags: Featured Content, Mental Health, Resources


Featured Article | Science + Research

Demystifying Drug Prices

Why are new therapies for neuromuscular diseases so expensive?

Tags: Drug Approval, Drug Development, Featured Content, Healthcare, Innovation, Resources


Featured Article | Personal Stories

Claiming My Courage

Jessica Stephan and her son, who is now 9 years old. I had to face my son’s diagnosis to take better care of my family and myself

Tags: From Where I Sit, Parenting