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The Resource Center answers readers’ questions

Follow these tips to gather the tools and support you need to live well

Viral vectors are an important area of research in the exciting field of gene-targeted therapies

A Q&A with Tahseen Mozaffar, MD

MDA Care Centers strive to expand access to quality care

Chelsea Moeller and her mother, Laura, both participated in the phase 2b Fulcrum ReDUX4 clinical trial last year. My experience participating in an FSHD clinical trial

May is Amyotrophic Lateral Sclerosis (ALS) Awareness Month, and while this past year was different — given the global pandemic we all endured — the research and support for finding new treatments…

The MDA Resource Center connects people in the neuromuscular disease community with helpful resources and information

Hunt family Coping skills to help you handle stress when raising a child with neuromuscular disease

Bella, a 15-year-old in Fort Worth, Texas, loves jellyfish, horses, anime, Billie Eilish, reading sci-fi and fantasy, and making art. But living with Friedreich’s ataxia (FA) makes it hard for her…